Ron Fournier, whose son Tyler has autism, is compiling stories and reflections from readers on the spectrum and from their loved ones. Reach out to Ron here with your own experiences. And be on the lookout for his new book, Love That Boy.
That’s how reader Gary describes his three amazing stepkids:
I was touched by the note about your son Tyler as I read it this morning. It was forwarded to me by my wife of nine years whose three children have all been diagnosed with ASD [autism spectrum disorder]. Her oldest son is 26 and seeking a bachelor’s degree in mathematics with plans to attend graduate school. She has 13-year-old twins who are seventh graders at a public school right now. One of the twins and the oldest son have Asperger’s while the other twin has a more severe form of autism with speech problems and more challenging behavioral issues.
My wife has struggled tirelessly to help her three kids adjust, adapt, and grow into the wonderful human beings they can become. They are so much better off because of their mom. She has faced many obstacles with each child, yet through her fiery determination and strong will, they have overcome those obstacles and were strengthened as a result.
Your note came at a particularly challenging time for her. Last night, as she lay in bed, she told me that she was not a good parent and that she had failed her younger son.
She has adjusted his IEP [individualized education program] so that he does half of his schooling at home under her supervision. He was not particularly excited about his studies that evening and he showed his frustration by ignoring her lessons. This had gone on for about three weeks and she punished him by taking away his various forms of entertainment. She was regretting her decision and felt that he hated her.
I reminded her of how well her two other children have done despite their ASD and how she has helped them overcome so many pitfalls in their lives. I also reminded her that he is so much better off because of her and that he is coming along just like his older brother. She just needed to remember the patience she showed her eldest.
My wife is an amazing woman. She can be so hard on herself because she wants her kids to have a great life. But there are times when so gets depressed trying to make that happen. I can only console her because I don’t understand all of it. The love of a mother for her child is immeasurable, but when there are three of them with ASD and that love is not commonly reciprocated, it can be very difficult to handle.
Your note was uplifting to her when she needed it the most. How do I know this? Her email to me with your forwarded note said, “I love my dandelions!!” I know she does and I know that she is cultivating them in her kitchen for the wonderful characteristics they possess.
Two readers responding to my note on autism reflect two disparate vantage points. The first is a 66-year-old Georgia man with Asperger’s Syndrome, a retired Army officer who has struggled socially his entire life. His subject line: “On the Spectrum.”
[B]oth parents and teachers must understand that not all young people are cut out to be “the leaders of tomorrow”—that some individuals will make their greatest contribution as tinkers or inventors or mechanics or engineers or programmers.
To quote Popeye the Sailor: “I am what I am and that’s all that I am!” And I’ve done okay.
The second is from an elementary school teacher who has taught children on the spectrum. Keith Bohlender of Toronto is neurotypical:
I read “My Little Dandelion,” as well as the Wildhood and Garcia articles, with great interest …. My wife is a speech therapist whose clientele is made up of pre-school children. Many of these children have very recently received diagnoses, or are facing the very real prospect that their beloved child may imminently be diagnosed with ASD [Autism Spectrum Disorder]. My wife is in the exceedingly difficult position of being able, after many years of experience, to expertly recognize the markers that are described in these articles.
She cannot, however, make a formal diagnosis—even when tearfully begged to do so by parents. So, she encourages the parents to seek an opinion from a medical professional.
I am sending all three of these articles to her, with the thought that she may be able to pass them on to some of the parents of her clientele. It may give them comfort and sustenance to read of how adults with ASD are able to cope, contribute and thrive.
Also worth checking out is the video seen above, on how creative expression can help kids with autism. And keep the emails coming—if you’re autistic or the parent of an autistic child and would like to share your story.
I used to dream my son would be an athlete. Now I enjoy watching Tyler chase his own dreams to be a history teacher or comedian. One thing I never considered my boy to be: a dandelion.
Not until I read a Forbes profile on a new acquaintance of mine, Thorkil Sonne, who uses the analogy to describe the brilliant uniqueness of autistic people—like his son and mine:
To most people, the dandelion is nothing more than an annoying weed – something to be rooted out of our lawns and flowerbeds. But what a lot of people don’t know is that, when cultivated, the dandelion is one of the most valuable and useful plants in nature. In many parts of the world, the dandelion is known for its nutritional, healing and medicinal properties. The value of a dandelion is very much dependent on our knowledge and perception of its value.
Most of us don’t want dandelions in our lawns – they don’t fit there. But if you place a dandelion plant in your kitchen garden, and cultivate it, it can turn out to be one of your most valuable plants. Dandelions are used to make beer, wine, salads, and natural medicines. Quite simply, if you choose to cultivate dandelions, you will reap their rewards. So, is a dandelion a weed or an herb? You decide. The same can be said for individuals with autism. The value of what you see depends on your level of understanding and accommodation.
The article describes Thorkil’s efforts to link autistic people with employers who need the distinctive skill sets that come with autism. Most employers don’t know what they’re missing. People with autism aren’t defective; they contribute a special sauce to the human experience. Steve Silberman puts it this way in his book NeuroTribes:
One of the most promising developments since the publication of “The Geek Syndrome” has been the emergence of the concept of neurodiversity: the notion that conditions like autism, dyslexia, and attention-deficit/hyperactivity disorder [ADHD] should be regarded as naturally occurring cognitive variations with distinctive strengths that have contributed to the evolution of technology and culture, rather than mere checklists of deficits and dysfunctions.”
After my son’s diagnosis six years ago, I slowly came to the same conclusion and wrote about it here, here, and here. But there is only so much I can do to help the cause—to help neurotypical people understand what it’s like to be autistic and to realize the value autism offers society—because I’m not truly a part of it. Because I am not autistic.
The perspectives I have on people and the world I’ve interacted with thus far in my life are necessarily informed by my [Asperger’s], whether it looks like I’m an Aspie or not. Ultimately, when my friend told me I don’t look autistic, he was essentially affirming my constructed normalcy, my ability to fake it. In high school, I would have relished in this aptitude to appear “same,” and would have taken his remark as a compliment. But I’ve come to realize that each attempt to somehow make myself more “acceptable” to someone else, more lovable, has left me with what is, in the end, a false connection. I don’t want to be judged based on my [autism] alone, but nor do I want it to not matter. I may not “look autistic” from the outside, but if you see with my eyes, I do.
Please read the powerful stories by Wildhood and Garcia, and let me know what you think. And if you’re autistic or the parent of an autistic child and would like to share your story, I’d love to hear from you as well.
Tyler accept his autism far better than his father once did. “It’s a part of me but I don’t find that it’s a big deal, that I have to be talking about it every five seconds,” he says in a video for Autism Speaks that will be released next month with my parenting memoir, Love That Boy. “Like blue eyes: I don’t talk about how I have blue yes. I have autism, that’s it.”
Midnight Mass is a morally urgent critique of how faith can fuel everyday cruelty and violence.
This story contains spoilers for the Netflix series Midnight Mass.
The Exorcist is a film I’ve long loved because it raised the bar not just for horror, but also for movies that explore questions of faith and doubt, good and evil, life and death. I know all of its beats by heart, but when I recently rewatched the 1973 classic, the ending hit differently. The movie concludes with an exorcism, naturally. Chris MacNeil has brought her daughter, Regan, to a host of medical professionals in a desperate attempt to save her from what turns out to be a demonic possession. But the only person who can save the girl, it seems, is a priest. The camera lingers on the mother’s exhausted face as two priests close the door to her daughter’s bedroom and go to work.
The election of the elders of an evangelical church is usually an uncontroversial, even unifying event. But this summer, at an influential megachurch in Northern Virginia, something went badly wrong. A trio of elders didn’t receive 75 percent of the vote, the threshold necessary to be installed.
“A small group of people, inside and outside this church, coordinated a divisive effort to use disinformation in order to persuade others to vote these men down as part of a broader effort to take control of this church,” David Platt, a 43-year-old minister at McLean Bible Church and a best-selling author, charged in a July 4 sermon.
Platt said church members had been misled, having been told, among other things, that the three individuals nominated to be elders would advocate selling the church building to Muslims, who would convert it into a mosque. In a second vote on July 18, all three nominees cleared the threshold. But that hardly resolved the conflict. Members of the church filed a lawsuit, claiming that the conduct of the election violated the church’s constitution.
Thousands of pages of internal documents offer the clearest picture yet of how Facebook endangers American democracy—and show that the company’s own employees know it.
Before I tell you what happened at exactly 2:28 p.m. on Wednesday, January 6, 2021, at the White House—and how it elicited a very specific reaction, some 2,400 miles away, in Menlo Park, California—you need to remember the mayhem of that day, the exuberance of the mob as it gave itself over to violence, and how several things seemed to happen all at once.
At 2:10 p.m., a live microphone captured a Senate aide’s panicked warning that “protesters are in the building,” and both houses of Congress began evacuating.
At 2:13 p.m., Vice President Mike Pence was hurried off the Senate floor and out of the chamber.
At 2:15 p.m., thunderous chants were heard: “Hang Mike Pence! Hang Mike Pence!”
At the White House, President Donald Trump was watching the insurrection live on television. The spectacle excited him. Which brings us to 2:28 p.m., the moment when Trump shared a message he had just tweeted with his 35 million Facebook followers: “Mike Pence didn’t have the courage to do what should have been done to protect our Country and our Constitution … USA demands the truth!”
Breaking up social-media companies is one way to fix them. Shutting their users up is a better one.
Your social life has a biological limit: 150. That’s the number—Dunbar’s number, proposed by the British psychologist Robin Dunbar three decades ago—of people with whom you can have meaningful relationships.
What makes a relationship meaningful? Dunbar gave TheNew York Times a shorthand answer: “those people you know well enough to greet without feeling awkward if you ran into them in an airport lounge”—a take that may accidentally reveal the substantial spoils of having produced a predominant psychological theory. The construct encompasses multiple “layers” of intimacy in relationships. We can reasonably expect to develop up to 150 productive bonds, but we have our most intimate, and therefore most connected, relationships with only about five to 15 closest friends. We can maintain much larger networks, but only by compromising the quality or sincerity of those connections; most people operate in much smaller social circles.
In ways both large and small, American society still assumes that the default adult has a partner and that the default household contains multiple people.
If you were to look under the roofs of American homes at random, it wouldn’t take long to find someone who lives alone. By the Census Bureau’s latest count, there are about 36 million solo dwellers, and together they make up 28 percent of U.S. households.
Even though this percentage has been climbing steadily for decades, these people are still living in a society that is tilted against them. In the domains of work, housing, shopping, and health care, much of American life is a little—and in some cases, a lot—easier if you have a partner or live with family members or housemates. The number of people who are inconvenienced by that fact grows every year.
Those who live alone, to be clear, are not lonely and miserable. Research indicates that, young or old, single people are more social than their partnered peers. Bella DePaulo, the author of How We Live Now: Redefining Home and Family in the 21st Century, reeled off to me some of the pleasures of having your own space: “the privacy, the freedom to arrange your life and your space just the way you want it—you get to decide when to sleep, when to get up, what you eat, when you eat, what you watch on Netflix, how you set the thermostat.”
A brilliant new account upends bedrock assumptions about 30,000 years of change.
Many years ago, when I was a junior professor at Yale, I cold-called a colleague in the anthropology department for assistance with a project I was working on. I didn’t know anything about the guy; I just selected him because he was young, and therefore, I figured, more likely to agree to talk.
Five minutes into our lunch, I realized that I was in the presence of a genius. Not an extremely intelligent person—a genius. There’s a qualitative difference. The individual across the table seemed to belong to a different order of being from me, like a visitor from a higher dimension. I had never experienced anything like it before. I quickly went from trying to keep up with him, to hanging on for dear life, to simply sitting there in wonder.
Claims about the drug are based on shoddy science—but that science is entirely unremarkable in its shoddiness.
Ivermectin is an antiparasitic drug, and a very good one. If you are infected with the roundworms that cause river blindness or the parasitic mites that cause scabies, it is wonderfully effective. It is cheap; it is accessible; and its discoverers won the Nobel Prize in 2015. It has also been widely promoted as a coronavirus prophylactic and treatment.
This promotion has been broadly criticized as a fever dream conceived in the memetic bowels of the internet and as a convenient buttress for bad arguments against vaccination. This is not entirely fair. Perhaps 70 to 100 studies have been conducted on the use of ivermectin for treating or preventing COVID-19; several dozen of them support the hypothesis that the drug is a plague mitigant. Twometa-analyses, which looked at data aggregated across subsets of these studies, concluded that the drug has value in the fight against the pandemic.
Internal documents show the company routinely placing public-relations, profit, and regulatory concerns over user welfare. And if you think it’s bad here, look beyond the U.S.
In the fall of 2019, Facebook launched a massive effort to combat the use of its platforms for human trafficking. Working around the clock, its employees searched Facebook and its subsidiary Instagram for keywords and hashtags that promoted domestic servitude in the Middle East and elsewhere. Over the course of a few weeks, the company took down 129,191 pieces of content, disabled more than 1,000 accounts, tightened its policies, and added new ways to detect this kind of behavior. After they were through, employees congratulated one another on a job well done.
It was a job well done. It just came a little late. In fact, a group of Facebook researchers focused on the Middle East and North Africa had found numerous Instagram profiles being used as advertisements for trafficked domestic servants as early as March 2018. “Indonesian brought with Tourist Visa,” one photo caption on a picture of a woman reads, in Arabic. “We have more of them.” But these profiles weren’t “actioned”—disabled or taken down—an internal report would explain, because Facebook’s policies “did not acknowledge the violation.” A year and a half later, an undercover BBC investigation revealed the full scope of the problem: a broad network that illegally trafficked domestic workers, facilitated by internet platforms and aided by algorithmically boosted hashtags. In response, Facebook banned one hashtag and took down some 700 Instagram profiles. But according to another internal report, “domestic servitude content remained on the platform.”
The James Webb Space Telescope, the long-awaited successor to Hubble, is mired in controversy over its namesake.
In 1999, Karen Knierman picked up a free mug at her first big astronomy conference, just before she started grad school. It bore the logo of an ambitious observatory, designed to peer at the most distant galaxies in the universe: NGST, short for Next Generation Space Telescope. The mug was on Knierman’s desk in 2002 when NASA made a surprise announcement: NGST was going to become JWST, after James Webb. Knierman sipped from her suddenly out-of-date mug and wondered, Who?
That was the prevailing reaction among scientists at the time. Webb, who died in 1992, was more of a behind-the-scenes manager than a space-science star; he had served as NASA’s second administrator, in the 1960s, during the run-up to the Apollo moon landings. But scientists went with the rebrand. Work on the telescope continued. Scientists got new merch, new mugs.
In every episode, Succession finds new rocks to turn over and new vermin to dissect.
This story contains spoilers for the second episode of Succession Season 3.
Before he joined Succession, the actor James Cromwell insisted that his character have some scruples. In a recent interview, Cromwell said that the show’s original scripts portrayed the stone-faced Ewan Roy as holding a personal grudge against his brother, the right-wing-media baron Logan Roy. Cromwell lobbied for Ewan’s rage to instead be rooted in a sense of social justice, and his character ended up delivering a John Oliver–style rant about how the “morally bankrupt” Logan “may well be more personally responsible for the death of this planet than any other single human being.”
In Season 3, the revolution that Ewan would seem to want has arrived. Logan’s son Kendall has turned whistleblower, threatening to expose the wrongdoings of the family’s conglomerate, Waystar Royco. As the ever-articulate Greg tells Ewan, Kendall wants to “be, like, good? Make the company nice, and so on, which, I guess, that’s kind of your thing?” But Ewan is not enthused. He dismisses Kendall as a “self-regarding popinjay” and other multisyllabic bad things. Questions of right and wrong, and principles and politics, are finally in play in Succession—and yet Ewan defaults to pettiness.