Ron Fournier, whose son Tyler has autism, is compiling stories and reflections from readers on the spectrum and from their loved ones. Reach out to Ron here with your own experiences. And be on the lookout for his new book, Love That Boy.
Two readers responding to my note on autism reflect two disparate vantage points. The first is a 66-year-old Georgia man with Asperger’s Syndrome, a retired Army officer who has struggled socially his entire life. His subject line: “On the Spectrum.”
[B]oth parents and teachers must understand that not all young people are cut out to be “the leaders of tomorrow”—that some individuals will make their greatest contribution as tinkers or inventors or mechanics or engineers or programmers.
To quote Popeye the Sailor: “I am what I am and that’s all that I am!” And I’ve done okay.
The second is from an elementary school teacher who has taught children on the spectrum. Keith Bohlender of Toronto is neurotypical:
I read “My Little Dandelion,” as well as the Wildhood and Garcia articles, with great interest …. My wife is a speech therapist whose clientele is made up of pre-school children. Many of these children have very recently received diagnoses, or are facing the very real prospect that their beloved child may imminently be diagnosed with ASD [Autism Spectrum Disorder]. My wife is in the exceedingly difficult position of being able, after many years of experience, to expertly recognize the markers that are described in these articles.
She cannot, however, make a formal diagnosis—even when tearfully begged to do so by parents. So, she encourages the parents to seek an opinion from a medical professional.
I am sending all three of these articles to her, with the thought that she may be able to pass them on to some of the parents of her clientele. It may give them comfort and sustenance to read of how adults with ASD are able to cope, contribute and thrive.
Also worth checking out is the video seen above, on how creative expression can help kids with autism. And keep the emails coming—if you’re autistic or the parent of an autistic child and would like to share your story.
I used to dream my son would be an athlete. Now I enjoy watching Tyler chase his own dreams to be a history teacher or comedian. One thing I never considered my boy to be: a dandelion.
Not until I read a Forbes profile on a new acquaintance of mine, Thorkil Sonne, who uses the analogy to describe the brilliant uniqueness of autistic people—like his son and mine:
To most people, the dandelion is nothing more than an annoying weed – something to be rooted out of our lawns and flowerbeds. But what a lot of people don’t know is that, when cultivated, the dandelion is one of the most valuable and useful plants in nature. In many parts of the world, the dandelion is known for its nutritional, healing and medicinal properties. The value of a dandelion is very much dependent on our knowledge and perception of its value.
Most of us don’t want dandelions in our lawns – they don’t fit there. But if you place a dandelion plant in your kitchen garden, and cultivate it, it can turn out to be one of your most valuable plants. Dandelions are used to make beer, wine, salads, and natural medicines. Quite simply, if you choose to cultivate dandelions, you will reap their rewards. So, is a dandelion a weed or an herb? You decide. The same can be said for individuals with autism. The value of what you see depends on your level of understanding and accommodation.
The article describes Thorkil’s efforts to link autistic people with employers who need the distinctive skill sets that come with autism. Most employers don’t know what they’re missing. People with autism aren’t defective; they contribute a special sauce to the human experience. Steve Silberman puts it this way in his book NeuroTribes:
One of the most promising developments since the publication of “The Geek Syndrome” has been the emergence of the concept of neurodiversity: the notion that conditions like autism, dyslexia, and attention-deficit/hyperactivity disorder [ADHD] should be regarded as naturally occurring cognitive variations with distinctive strengths that have contributed to the evolution of technology and culture, rather than mere checklists of deficits and dysfunctions.”
After my son’s diagnosis six years ago, I slowly came to the same conclusion and wrote about it here, here, and here. But there is only so much I can do to help the cause—to help neurotypical people understand what it’s like to be autistic and to realize the value autism offers society—because I’m not truly a part of it. Because I am not autistic.
The perspectives I have on people and the world I’ve interacted with thus far in my life are necessarily informed by my [Asperger’s], whether it looks like I’m an Aspie or not. Ultimately, when my friend told me I don’t look autistic, he was essentially affirming my constructed normalcy, my ability to fake it. In high school, I would have relished in this aptitude to appear “same,” and would have taken his remark as a compliment. But I’ve come to realize that each attempt to somehow make myself more “acceptable” to someone else, more lovable, has left me with what is, in the end, a false connection. I don’t want to be judged based on my [autism] alone, but nor do I want it to not matter. I may not “look autistic” from the outside, but if you see with my eyes, I do.
Please read the powerful stories by Wildhood and Garcia, and let me know what you think. And if you’re autistic or the parent of an autistic child and would like to share your story, I’d love to hear from you as well.
Tyler accept his autism far better than his father once did. “It’s a part of me but I don’t find that it’s a big deal, that I have to be talking about it every five seconds,” he says in a video for Autism Speaks that will be released next month with my parenting memoir, Love That Boy. “Like blue eyes: I don’t talk about how I have blue yes. I have autism, that’s it.”
The amazing thing about the saga is how much of it happened in the full light of day.
Roger Stone’s best trick was always his upper-class-twit wardrobe. He seemed such a farcical character, such a Klaxon-alarm-from-a-mile-away goofball—who could take him seriously?
Aldrich Ames, Robert Hanssen: They had tradecraft. They didn’t troll people on Instagram or blab to reporters. They behaved in the way you would expect of people betraying their country: conscious of the magnitude of their acts, determined to avoid the limelight.
Stone could not have been more different. He clowned, he cavorted, he demanded limelight—which made it in some ways impossible to imagine that he could have done anything seriously amiss. Bank robbers don’t go on Twitter to announce, “Hey, I’m going to rob a bank, sorry, not sorry.” Or so you’d expect.
White, conservative Christians who set aside the tenets of their faith to support Donald Trump are now left with little to show for it.
The closest thing social conservatives and evangelical supporters of President Donald Trump had to a conversation stopper, when pressed about their support for a president who is so manifestly corrupt, cruel, mendacious, and psychologically unwell, was a simple phrase: “But Gorsuch.”
Those two words were shorthand for their belief that their reverential devotion to Trump would result in great advances for their priorities and their policy agenda, and no priority was more important than the Supreme Court.
Donald Trump may be a flawed character, they argued, but at least he appointed Neil Gorsuch to the Supreme Court.
That is the case decided in mid-June in which the majority opinion, written by Justice Gorsuch, protected gay and transgender individuals from workplace discrimination, handing the LGBTQ movement a historic victory.
The gap between soaring cases and falling deaths is being weaponized by the right to claim a hollow victory in the face of shameless failure. What’s really going on?
Updated at 1:40 p.m. ET on July 9, 2020.
For the past few weeks, I have been obsessed with a mystery emerging in the national COVID-19 data.
Cases have soared to terrifying levels since June. Yesterday, the U.S. had 62,000 confirmed cases, an all-time high—and about five times more than the entire continent of Europe. Several U.S. states, including Arizona and Florida, currently have more confirmed cases per capita than any other country in the world.
But average daily deaths are down 75 percent from their April peak. Despite higher death counts on Tuesday and Wednesday, the weekly average has largely plateaued in the past two weeks.
The gap between spiking cases and falling-then-flatlining deaths has become the latest partisan flashpoint. President Donald Trump has brushed off the coronavirus surge by emphasizing the lower death rate, saying that “99 percent of [COVID-19 cases] are totally harmless.” On Tuesday, Anthony Fauci, the director of the National Institute of Allergy and Infectious Diseases, warned Americans against “[taking] comfort in the lower rate of death” just hours before Trump tweeted triumphantly: “Death Rate from Coronavirus is down tenfold!”
The disappearance of local news is a slow-moving disaster.
In the summer of 1945, for 17 days, the newspaper deliverers of New York City went on strike. As hundreds of thousands of city residents found themselves temporarily deprived of their daily papers, the behavioral scientist Bernard Berelson saw an opportunity: He wanted to understand what it felt like for people to suddenly lose their primary sources of news. So he set about interviewing them. Asked what the absent papers had meant to them, the interviewees often responded with bromides about news’s crucial role in a government of the people. With more pressing, though, their responses deepened. What they really missed, Berelson came to realize, wasn’t the news as a noun so much as the news as a verb: the daily rituals of the reading, and the connection that reading made them feel to their communities and to the wider world. News is a product and a service and a foundation of any functioning democracy; what it is also, though, is an anchor—a tether to other people, woven of words and arguments and daily discoveries. Without it, people felt adrift.
If we move too fast, ignore science, or reopen without careful planning, this will backfire.
In any other July, millions of American schoolchildren, their families, and their teachers would be eagerly anticipating, or perhaps dreading, the start of a new school year. This year is different. With coronavirus case counts increasing rapidly in many states, it’s natural to wonder whether there will be school at all.
Trump’s move tonight to commute the sentence of his longtime associate Roger Stone, nearly five months after a federal judge sentenced him to more than three years in prison, was surely the least surprising of his many high-profile acts of executive clemency. The president, after all, had been complaining about Stone’s prosecution from the start; had telegraphed by tweet his displeasure with the Department of Justice’s sentencing recommendation; and had tried to browbeat Judge Amy Berman Jackson into granting Stone a new trial.
But the seeming inevitability of Trump’s decision made it no less brazen. Stone was more than a political ally of the president, like Arpaio. He was not just a friend of a friend, like Kerik, Libby, and Milken—whose pardons were encouraged privately by Trump’s buddies or via public endorsements from the president’s fans on Fox News. Stone was a longtime confidant of Trump, but he was more than that. To the president’s critics, he was an accomplice to Trump’s crimes, convicted of lying to Congress and threatening a witness in the investigation into Russian interference in the 2016 election, which directly involved Trump and his campaign. As Jackson noted in explaining her sentence, Stone “was not prosecuted for standing up for the president; he was prosecuted for covering up for the president.”
Many American public-health specialists are at risk of burning out as the coronavirus surges back.
Join Ed Yong for a conversation about COVID-19 at Pulse, The Atlantic's virtual summit on health care on July 15. Register here.
Saskia Popescu’s phone buzzes throughout the night, waking her up. It had already buzzed 99 times before I interviewed her at 9:15 a.m. ET last Monday. It buzzed three times during the first 15 minutes of our call. Whenever a COVID-19 case is confirmed at her hospital system, Popescu gets an email, and her phone buzzes. She cannot silence it. An epidemiologist at the University of Arizona, Popescu works to prepare hospitals for outbreaks of emerging diseases. Her phone is now a miserable metronome, ticking out the rhythm of the pandemic ever more rapidly as Arizona’s cases climb. “It has almost become white noise,” she told me.
Taste the Nation is breezy in tone, but it exposes the betrayals at the heart of “American” cuisine.
Food, at its essence, is sustenance; that much is simple. Where things get complicated is in all the manifold ways it sustains us. Consider the burrito. In the first episode of Padma Lakshmi’s new Hulu show, Taste the Nation, the food writer and longtime Top Chef host travels to El Paso, Texas, where she attempts to isolate all the different ingredients in one of America’s favorite dishes. At the Jalisco Cafe, a chef griddling oozy eggs with beans on a stovetop tells her that the perfect burrito comes down to an attention to detail. The dish, another interviewee tells Lakshmi, is pure practical convenience: It’s quick to assemble and eat on the way to work. It can also signify a mother’s love, a whole meal swaddled in a pillowy tortilla and tucked into a child’s pocket before the day begins. And, in a city where the hum of helicopters surveying the border adds ambient foreboding to every interaction, burritos also represent the essence of American food: cuisine from one culture cloaked in the imposed ingredients of another (in this case, wheat flour). “A burrito,” Lakshmi observes, “is tradition wrapped in colonization.”
As states ease restrictions on businesses, individuals face a psychological morass.
Reopening is a mess. Photographs of crowds jostling outside bars, patrons returning to casinos, and a tightly packed, largely maskless audience listening to President Donald Trump’s speech at Mount Rushmore all show the U.S. careening back to pre-coronavirus norms. Meanwhile, those of us watching at home are like the audience of a horror movie, yelling “Get out of there!” at our screens. As despair rises, the temptation to shame people who fail at social distancing becomes difficult to resist.
But Americans’ disgust should be aimed at governments and institutions, not at one another. Individuals are being asked to decide for themselves what chances they should take, but a century of research on human cognition shows that people are bad at assessing risk in complex situations. During a disease outbreak, vague guidance and ambivalent behavioral norms will lead to thoroughly flawed thinking. If a business is open but you would be foolish to visit it, that is a failure of leadership.
The end of California’s coronavirus miracle holds sobering lessons.
On March 1, California seemed destined to be pummeled by the coronavirus. America’s most populous state has large, crowded cities and a diverse population, and travel between it and Asia and Europe is prodigious. Seattle, another West Coast hub, had just become the first U.S. city to be hit by the virus, and a cruise ship crawling with COVID-19 was about to enter San Francisco Bay.
Three months later, California had weathered the virus’s first storm. By June 1, the state had experienced a total of 115,000 cases and 4,200 deaths. In contrast, New York State, its population half that of California, had seen 372,000 cases and 29,900 deaths, not counting thousands more who died at home. Had California’s per capita mortality rate equaled New York’s, 55,000 more people would have died.