Ron Fournier, whose son Tyler has autism, is compiling stories and reflections from readers on the spectrum and from their loved ones. Reach out to Ron here with your own experiences. And be on the lookout for his new book, Love That Boy.
Our latest reader contributor and parent of an autistic child strikes a chord with me and my family: Late diagnosis. Check. Solitary life. Check. Crushing rejection. Check. A parent’s desperate dream: “I wish more employers could see past the facade of autism to recognize the smart, hard-working people who simply have minds that are wired differently from the majority of the population.” Here’s our reader in full:
Thanks for sharing so many of these stories. My daughter had some of the typical autism traits as a preschooler, but she was so intelligent, we didn’t think she possibly could be autistic.
As she rose through elementary school, she slowly pulled more into her own little world, and away from all of the other children. By fifth grade, her school guidance counselor told us she was certain my daughter was autistic. As we read more about the spectrum, it was obvious to us, too. We didn’t get her officially diagnosed until she was 16, and then only as a precaution in case she needed help in college.
She never needed help (though she did live at home instead of on campus). She finished college with a 3.9 GPA in biology, with a goal to go to medical school because she always had wanted to help others. Her grades and great MCAT scores earned interviews at medical schools, but she couldn’t get past the admissions interviews.
I understand why they couldn’t see her as a physician. She struggles to look people in the eye. She speaks in a monotone. She answers questions with the fewest words possible. But she would have been amazing at the analytical aspects of pathology.
Crushed by the rejection, she went with a backup plan of lab work. Thankfully, a wonderful instructor saw her potential and accepted her into a histotechnology training program.
When she finished the one-year program, the hospital lab where she trained had no openings for her. For eight months, she got a couple of job interviews a month. Like the med school interviewers, they couldn’t see her working in their labs.
Finally, the lab where she trained had an opening and hired her. They had seen how dedicated and smart she was. Two years later, she is the perfect person to work the overnight shift, which leaves her alone in the lab for about half the shift. Following protocols to the letter every time is so important in lab work, and that’s a strength of many with autism. Her life is very solitary, but she’s happy that she has found her own way to help others.
As parents, it hurt us when she had no real friends in school, and no social life in college, but it never bothered her. It took us a long time to realize her needs for happiness were different from ours. Now, we’re so proud of her, and she even seems proud of herself for finding her own niche in life. I wish more employers could see past the facade of autism to recognize the smart, hard-working people who simply have minds that are wired differently from the majority of the population.
On happiness, it took me years to realize that Tyler’s needs were different from my own. And it was only after digging into research on happiness (and a trip to Monticello, where Thomas Jefferson pursued his) that I sorted through the difference between goodness and pleasure. The latter is what parents most often want for their kids, including neurotypicals. But it’s the former that makes them happy (Marc Gellman sums this up nicely here.)
On employment, it’s worth noting here that Hillary Clinton made big news Monday that was little-noticed in the media. Fielding questions from a campaign audience, Clinton told an autistic lawyer she opposed a Depression-era labor law that allow employers to hire disabled people at a subminimum wage. Sometimes as low as 8 cents per hour. (If you or someone you care about has worked for subminimum wages as a disabled worker, please let me know your story.)
That’s how reader Gary describes his three amazing stepkids:
I was touched by the note about your son Tyler as I read it this morning. It was forwarded to me by my wife of nine years whose three children have all been diagnosed with ASD [autism spectrum disorder]. Her oldest son is 26 and seeking a bachelor’s degree in mathematics with plans to attend graduate school. She has 13-year-old twins who are seventh graders at a public school right now. One of the twins and the oldest son have Asperger’s while the other twin has a more severe form of autism with speech problems and more challenging behavioral issues.
My wife has struggled tirelessly to help her three kids adjust, adapt, and grow into the wonderful human beings they can become. They are so much better off because of their mom. She has faced many obstacles with each child, yet through her fiery determination and strong will, they have overcome those obstacles and were strengthened as a result.
Your note came at a particularly challenging time for her. Last night, as she lay in bed, she told me that she was not a good parent and that she had failed her younger son.
She has adjusted his IEP [individualized education program] so that he does half of his schooling at home under her supervision. He was not particularly excited about his studies that evening and he showed his frustration by ignoring her lessons. This had gone on for about three weeks and she punished him by taking away his various forms of entertainment. She was regretting her decision and felt that he hated her.
I reminded her of how well her two other children have done despite their ASD and how she has helped them overcome so many pitfalls in their lives. I also reminded her that he is so much better off because of her and that he is coming along just like his older brother. She just needed to remember the patience she showed her eldest.
My wife is an amazing woman. She can be so hard on herself because she wants her kids to have a great life. But there are times when so gets depressed trying to make that happen. I can only console her because I don’t understand all of it. The love of a mother for her child is immeasurable, but when there are three of them with ASD and that love is not commonly reciprocated, it can be very difficult to handle.
Your note was uplifting to her when she needed it the most. How do I know this? Her email to me with your forwarded note said, “I love my dandelions!!” I know she does and I know that she is cultivating them in her kitchen for the wonderful characteristics they possess.
Two readers responding to my note on autism reflect two disparate vantage points. The first is a 66-year-old Georgia man with Asperger’s Syndrome, a retired Army officer who has struggled socially his entire life. His subject line: “On the Spectrum.”
[B]oth parents and teachers must understand that not all young people are cut out to be “the leaders of tomorrow”—that some individuals will make their greatest contribution as tinkers or inventors or mechanics or engineers or programmers.
To quote Popeye the Sailor: “I am what I am and that’s all that I am!” And I’ve done okay.
The second is from an elementary school teacher who has taught children on the spectrum. Keith Bohlender of Toronto is neurotypical:
I read “My Little Dandelion,” as well as the Wildhood and Garcia articles, with great interest …. My wife is a speech therapist whose clientele is made up of pre-school children. Many of these children have very recently received diagnoses, or are facing the very real prospect that their beloved child may imminently be diagnosed with ASD [Autism Spectrum Disorder]. My wife is in the exceedingly difficult position of being able, after many years of experience, to expertly recognize the markers that are described in these articles.
She cannot, however, make a formal diagnosis—even when tearfully begged to do so by parents. So, she encourages the parents to seek an opinion from a medical professional.
I am sending all three of these articles to her, with the thought that she may be able to pass them on to some of the parents of her clientele. It may give them comfort and sustenance to read of how adults with ASD are able to cope, contribute and thrive.
Also worth checking out is the video seen above, on how creative expression can help kids with autism. And keep the emails coming—if you’re autistic or the parent of an autistic child and would like to share your story.
I used to dream my son would be an athlete. Now I enjoy watching Tyler chase his own dreams to be a history teacher or comedian. One thing I never considered my boy to be: a dandelion.
Not until I read a Forbes profile on a new acquaintance of mine, Thorkil Sonne, who uses the analogy to describe the brilliant uniqueness of autistic people—like his son and mine:
To most people, the dandelion is nothing more than an annoying weed – something to be rooted out of our lawns and flowerbeds. But what a lot of people don’t know is that, when cultivated, the dandelion is one of the most valuable and useful plants in nature. In many parts of the world, the dandelion is known for its nutritional, healing and medicinal properties. The value of a dandelion is very much dependent on our knowledge and perception of its value.
Most of us don’t want dandelions in our lawns – they don’t fit there. But if you place a dandelion plant in your kitchen garden, and cultivate it, it can turn out to be one of your most valuable plants. Dandelions are used to make beer, wine, salads, and natural medicines. Quite simply, if you choose to cultivate dandelions, you will reap their rewards. So, is a dandelion a weed or an herb? You decide. The same can be said for individuals with autism. The value of what you see depends on your level of understanding and accommodation.
The article describes Thorkil’s efforts to link autistic people with employers who need the distinctive skill sets that come with autism. Most employers don’t know what they’re missing. People with autism aren’t defective; they contribute a special sauce to the human experience. Steve Silberman puts it this way in his book NeuroTribes:
One of the most promising developments since the publication of “The Geek Syndrome” has been the emergence of the concept of neurodiversity: the notion that conditions like autism, dyslexia, and attention-deficit/hyperactivity disorder [ADHD] should be regarded as naturally occurring cognitive variations with distinctive strengths that have contributed to the evolution of technology and culture, rather than mere checklists of deficits and dysfunctions.”
After my son’s diagnosis six years ago, I slowly came to the same conclusion and wrote about it here, here, and here. But there is only so much I can do to help the cause—to help neurotypical people understand what it’s like to be autistic and to realize the value autism offers society—because I’m not truly a part of it. Because I am not autistic.
The perspectives I have on people and the world I’ve interacted with thus far in my life are necessarily informed by my [Asperger’s], whether it looks like I’m an Aspie or not. Ultimately, when my friend told me I don’t look autistic, he was essentially affirming my constructed normalcy, my ability to fake it. In high school, I would have relished in this aptitude to appear “same,” and would have taken his remark as a compliment. But I’ve come to realize that each attempt to somehow make myself more “acceptable” to someone else, more lovable, has left me with what is, in the end, a false connection. I don’t want to be judged based on my [autism] alone, but nor do I want it to not matter. I may not “look autistic” from the outside, but if you see with my eyes, I do.
Please read the powerful stories by Wildhood and Garcia, and let me know what you think. And if you’re autistic or the parent of an autistic child and would like to share your story, I’d love to hear from you as well.
Tyler accept his autism far better than his father once did. “It’s a part of me but I don’t find that it’s a big deal, that I have to be talking about it every five seconds,” he says in a video for Autism Speaks that will be released next month with my parenting memoir, Love That Boy. “Like blue eyes: I don’t talk about how I have blue yes. I have autism, that’s it.”
The surprisingly short life of new electronic devices
Updated on March 22 at 9:06 p.m. ET.
Two years ago, Desmond Hughes heard so many of his favorite podcasters extolling AirPods, Apple’s tiny, futuristic $170 wireless headphones, that he decided they were worth the splurge. He quickly became a convert.
Hughes is still listening to podcasters talk about their AirPods, but now they’re complaining. The battery can no longer hold a charge, they say, rendering them functionally useless. Apple bloggers agree: “AirPods are starting to show their age for early adopters,” Zac Hall, an editor at 9to5Mac, wrote in a post in January, detailing how he frequently hears a low-battery warning in his AirPods now. Earlier this month, Apple Insider tested a pair of AirPods purchased in 2016 against a pair from 2018, and found that the older pair died after two hours and 16 minutes. “That’s less than half the stated battery life for a new pair,” the writer William Gallagher concluded.
The unusual situation facing Robert Mueller does not justify a repeal of well-established traditions of confidentiality.
As the nation awaits the Mueller report, a return to first principles is in order. One relevant first principle was dramatically illustrated in the breach during the waning weeks of the 2016 presidential campaign. Then–FBI Director James Comey announced at a press conference that no criminal charges would be brought against Hillary Clinton. Comey didn’t stop there, however. In that press conference, which will continue to live in infamy, Comey sharply criticized the former secretary of state for her ill-considered conduct in housing a server in her private residence, only to receive official and—not infrequently—classified information.
The nation should have risen, as one, in righteous indignation in the aftermath of the Comey press conference. In a single misadventure, Comey both seized power that was not his—the power to seek an indictment, a prerogative that was entrusted to the attorney general—and then violated one of the fundamental principles of public prosecution: Thou shalt not drag a subject or target of the investigation through the mud via public criticism. Prosecutors either seek an indictment, or remain quiet.
Everything lawmakers needed to know about Trump and Russia was in the public record.
No matter what Attorney General William Barr reveals—or doesn’t—about Special Counsel Robert Mueller’s report, everything Congress needed to know about Donald Trump and Russia was already clear.
October 7, 2016, was the near-death experience of the Trump campaign. That Friday afternoon, David Fahrenthold of The Washington Post reported on an Access Hollywood tape in which Trump boasts of grabbing women. The shock battered the campaign. Speaker of the House Paul Ryan declared publicly that he was “sickened” by Trump, canceled a joint appearance with him, and declined to answer whether he still supported the Trump candidacy.
Less than one hour later, WikiLeaks dumped its largest and most damaging trove of hacked emails to and from Democratic operatives. It included two emails sent years before to the future Hillary Clinton campaign chairman John Podesta. The messages criticized the teachings of the Catholic Church on women and sexuality. The Trump campaign instantly seized on them as proof of the Clinton campaign’s supposed anti-Catholic animus—a useful weapon to help erase memories of Trump’s Twitter attacks on the pope earlier in 2016.
A former Jehovah's Witness is using stolen documents to expose allegations that the religion has kept hidden for decades.
In March 1997, the Watchtower Bible and Tract Society, the nonprofit organization that oversees the Jehovah’s Witnesses, sent a letter to each of its 10,883 U.S. congregations, and to many more congregations worldwide. The organization was concerned about the legal risk posed by possible child molesters within its ranks. The letter laid out instructions on how to deal with a known predator: Write a detailed report answering 12 questions—Was this a onetime occurrence, or did the accused have a history of child molestation? How is the accused viewed within the community? Does anyone else know about the abuse?—and mail it to Watchtower’s headquarters in a special blue envelope. Keep a copy of the report in your congregation’s confidential file, the instructions continued, and do not share it with anyone.
Americans’ dairy consumption is about to get a lot more cultured. An Object Lesson.
Cottage cheese faced a problem: After World War II, batches of the soft, lumpy dairy concoction developed a propensity to take on a rancid odor and a bitter taste. That changed in 1951, when dairy researchers identified the culprits, three bacterial miscreants that produced this “slimy curd defect.” To prevent the condition, researchers advised cheesemakers to keep these bacteria from entering their manufacturing facilities in the first place. Thus ended the scourge.
Despite this and other advances in cottage-cheese production, like texture analyzers, high-powered microscopes, and trained human tasters, cottage cheese has never enjoyed the same popularity as yogurt. That’s because cottage cheese, once revered for its flavor and versatility, has taken a series of gut-punches in the dairy sector: enduring associations with weight loss, inconvenient packaging, and near-total displacement by its cousin, Greek yogurt, to name a few. But stalwart food scientists and artisanal dairy farmers have high hopes for the future of cottage cheese. With yogurt sales on the decline, a golden age of curds might be right around the corner.
Even without a physical state, the Islamic State can still fund its main product: political violence.
BEIRUT—If you’re looking to transfer money here, there’s a chance you will be directed to Abu Shawkat. He works out of a small office in a working-class suburb of the Lebanese capital, but won’t give you its exact location. Instead, he’ll direct you to a nearby alleyway, and whether he shows up depends on whether he likes the look of you.
Abu Shawkat—not his real name—is part of the hawala system, which is often used to transfer cash between places where the banking system has broken down or is too expensive for some to access. If he agrees to do business, you’ll set a password and he will take your cash, then provide you with the contact information of a hawala broker in the city where your money is headed. Anyone who offers that specific password to that particular broker will get the funds. Thus, cash can travel across borders without any inquiry into who is sending or receiving it, or its purpose.
After waking up with a searing pain that radiates down to my shoulders, I hunt for the culprit.
My body’s preferred way to remind me that I’m aging is through pain. In recent years, my level of consequence-free drinking has plummeted from “omg liMitLe$s!!” to one and a half standard glasses of Chardonnay. In yoga, I am often forced not to enter the “fullest expression of the pose” and instead to just kind of lie there.
And then there is The Tweak. About once a month—not at any certain time of the month, but roughly 12 times a year—I will wake up feeling like someone French-braided my neck muscles overnight. The pain burns from the base of my skull, down one side of my neck or the other, and onto the adjacent shoulder blade. The Tweak makes it impossible to rotate my head fully to one side or the other for the day. It’s not an athletic injury—I know no sport. It’s also not related to any underlying medical conditions that I know of, though when I talked with experts for this article, they asked me “if I am stressed,” which I took to be a rhetorical question.
“If Senators Paul and Udall really want to honor our service members, here are a few things they could do with that money instead.”
In an essay on TheAtlantic.com last week, Senators Rand Paul and Tom Udall urged members of Congress to support their bipartisan joint resolution, the American Forces Going Home After Noble (AFGHAN) Service Act. The bill, they wrote, would “return our combat forces home from Afghanistan in an orderly and responsible way, while also setting a framework for political reconciliation in Afghanistan without a permanent U.S. presence.” It would also provide a $2,500 bonus to members of the military who have served in the Global War on Terror.
“Congress must step up and step in to ensure that another generation of Americans is not sent to fight a war with no end in sight,” Paul and Udall wrote, “especially when there is no military solution to the challenges facing Afghanistan.”
Donald Cline must have thought no one would ever know. Then DNA testing came along.
Updated at 5:23 p.m. ET on March 18, 2019.
The first Facebookmessage arrived when Heather Woock was packing for vacation, in August 2017. It was from a stranger claiming to be her half sibling. She assumed the message was some kind of scam; her parents had never told her she might have siblings. But the message contained one detail that spooked her. The sender mentioned a doctor, Donald Cline. Woock knew that name; her mother had gone to Cline for fertility treatments before she was born. Had this person somehow gotten her mother’s medical history?
Her mom said not to worry. So Woock, who is 33 and lives just outside Indianapolis, flew to the West Coast for her vacation. She got a couple more messages from other supposed half siblings while she was away. Their persistence was strange. But then her phone broke, and she spent the next week and a half outdoors in Seattle and Vancouver, blissfully disconnected.
Michael Jackson’s music is a gift. What do we do with it now?
The camera flies high above the palm trees of Hollywood, soaring north and west, all the way to the suburb of Simi Valley, where it slows down to seek out a certain street, and then slows some more until it finds a particular house. It hovers above it, and then swoops down, pushing in all the way to the doorstep, where it rests, impatient. It is the house where James Safechuck, one of the two men at the center of Leaving Neverland, an HBO documentary, grew up, but in a way it might as well be the Darlings’ house: “Peter Pan chose this particular house because there were people here who believed in him.”
But the Safechucks are not the only people who believe, because here is another suburban house, and here again is that seeking, searching intelligence, the camera pushing closer and closer. It is the house in Brisbane, Australia, where the other subject of the documentary, Wade Robson, grew up. The implication is clear: Michael Jackson could have any little boy in the world; all he needed were parents who would serve up their sons to him.