Ron Fournier, whose son Tyler has autism, is compiling stories and reflections from readers on the spectrum and from their loved ones. Reach out to Ron here with your own experiences. And be on the lookout for his new book, Love That Boy.
Our latest reader contributor and parent of an autistic child strikes a chord with me and my family: Late diagnosis. Check. Solitary life. Check. Crushing rejection. Check. A parent’s desperate dream: “I wish more employers could see past the facade of autism to recognize the smart, hard-working people who simply have minds that are wired differently from the majority of the population.” Here’s our reader in full:
Thanks for sharing so many of these stories. My daughter had some of the typical autism traits as a preschooler, but she was so intelligent, we didn’t think she possibly could be autistic.
As she rose through elementary school, she slowly pulled more into her own little world, and away from all of the other children. By fifth grade, her school guidance counselor told us she was certain my daughter was autistic. As we read more about the spectrum, it was obvious to us, too. We didn’t get her officially diagnosed until she was 16, and then only as a precaution in case she needed help in college.
She never needed help (though she did live at home instead of on campus). She finished college with a 3.9 GPA in biology, with a goal to go to medical school because she always had wanted to help others. Her grades and great MCAT scores earned interviews at medical schools, but she couldn’t get past the admissions interviews.
I understand why they couldn’t see her as a physician. She struggles to look people in the eye. She speaks in a monotone. She answers questions with the fewest words possible. But she would have been amazing at the analytical aspects of pathology.
Crushed by the rejection, she went with a backup plan of lab work. Thankfully, a wonderful instructor saw her potential and accepted her into a histotechnology training program.
When she finished the one-year program, the hospital lab where she trained had no openings for her. For eight months, she got a couple of job interviews a month. Like the med school interviewers, they couldn’t see her working in their labs.
Finally, the lab where she trained had an opening and hired her. They had seen how dedicated and smart she was. Two years later, she is the perfect person to work the overnight shift, which leaves her alone in the lab for about half the shift. Following protocols to the letter every time is so important in lab work, and that’s a strength of many with autism. Her life is very solitary, but she’s happy that she has found her own way to help others.
As parents, it hurt us when she had no real friends in school, and no social life in college, but it never bothered her. It took us a long time to realize her needs for happiness were different from ours. Now, we’re so proud of her, and she even seems proud of herself for finding her own niche in life. I wish more employers could see past the facade of autism to recognize the smart, hard-working people who simply have minds that are wired differently from the majority of the population.
On happiness, it took me years to realize that Tyler’s needs were different from my own. And it was only after digging into research on happiness (and a trip to Monticello, where Thomas Jefferson pursued his) that I sorted through the difference between goodness and pleasure. The latter is what parents most often want for their kids, including neurotypicals. But it’s the former that makes them happy (Marc Gellman sums this up nicely here.)
On employment, it’s worth noting here that Hillary Clinton made big news Monday that was little-noticed in the media. Fielding questions from a campaign audience, Clinton told an autistic lawyer she opposed a Depression-era labor law that allow employers to hire disabled people at a subminimum wage. Sometimes as low as 8 cents per hour. (If you or someone you care about has worked for subminimum wages as a disabled worker, please let me know your story.)
That’s how reader Gary describes his three amazing stepkids:
I was touched by the note about your son Tyler as I read it this morning. It was forwarded to me by my wife of nine years whose three children have all been diagnosed with ASD [autism spectrum disorder]. Her oldest son is 26 and seeking a bachelor’s degree in mathematics with plans to attend graduate school. She has 13-year-old twins who are seventh graders at a public school right now. One of the twins and the oldest son have Asperger’s while the other twin has a more severe form of autism with speech problems and more challenging behavioral issues.
My wife has struggled tirelessly to help her three kids adjust, adapt, and grow into the wonderful human beings they can become. They are so much better off because of their mom. She has faced many obstacles with each child, yet through her fiery determination and strong will, they have overcome those obstacles and were strengthened as a result.
Your note came at a particularly challenging time for her. Last night, as she lay in bed, she told me that she was not a good parent and that she had failed her younger son.
She has adjusted his IEP [individualized education program] so that he does half of his schooling at home under her supervision. He was not particularly excited about his studies that evening and he showed his frustration by ignoring her lessons. This had gone on for about three weeks and she punished him by taking away his various forms of entertainment. She was regretting her decision and felt that he hated her.
I reminded her of how well her two other children have done despite their ASD and how she has helped them overcome so many pitfalls in their lives. I also reminded her that he is so much better off because of her and that he is coming along just like his older brother. She just needed to remember the patience she showed her eldest.
My wife is an amazing woman. She can be so hard on herself because she wants her kids to have a great life. But there are times when so gets depressed trying to make that happen. I can only console her because I don’t understand all of it. The love of a mother for her child is immeasurable, but when there are three of them with ASD and that love is not commonly reciprocated, it can be very difficult to handle.
Your note was uplifting to her when she needed it the most. How do I know this? Her email to me with your forwarded note said, “I love my dandelions!!” I know she does and I know that she is cultivating them in her kitchen for the wonderful characteristics they possess.
Two readers responding to my note on autism reflect two disparate vantage points. The first is a 66-year-old Georgia man with Asperger’s Syndrome, a retired Army officer who has struggled socially his entire life. His subject line: “On the Spectrum.”
[B]oth parents and teachers must understand that not all young people are cut out to be “the leaders of tomorrow”—that some individuals will make their greatest contribution as tinkers or inventors or mechanics or engineers or programmers.
To quote Popeye the Sailor: “I am what I am and that’s all that I am!” And I’ve done okay.
The second is from an elementary school teacher who has taught children on the spectrum. Keith Bohlender of Toronto is neurotypical:
I read “My Little Dandelion,” as well as the Wildhood and Garcia articles, with great interest …. My wife is a speech therapist whose clientele is made up of pre-school children. Many of these children have very recently received diagnoses, or are facing the very real prospect that their beloved child may imminently be diagnosed with ASD [Autism Spectrum Disorder]. My wife is in the exceedingly difficult position of being able, after many years of experience, to expertly recognize the markers that are described in these articles.
She cannot, however, make a formal diagnosis—even when tearfully begged to do so by parents. So, she encourages the parents to seek an opinion from a medical professional.
I am sending all three of these articles to her, with the thought that she may be able to pass them on to some of the parents of her clientele. It may give them comfort and sustenance to read of how adults with ASD are able to cope, contribute and thrive.
Also worth checking out is the video seen above, on how creative expression can help kids with autism. And keep the emails coming—if you’re autistic or the parent of an autistic child and would like to share your story.
I used to dream my son would be an athlete. Now I enjoy watching Tyler chase his own dreams to be a history teacher or comedian. One thing I never considered my boy to be: a dandelion.
Not until I read a Forbes profile on a new acquaintance of mine, Thorkil Sonne, who uses the analogy to describe the brilliant uniqueness of autistic people—like his son and mine:
To most people, the dandelion is nothing more than an annoying weed – something to be rooted out of our lawns and flowerbeds. But what a lot of people don’t know is that, when cultivated, the dandelion is one of the most valuable and useful plants in nature. In many parts of the world, the dandelion is known for its nutritional, healing and medicinal properties. The value of a dandelion is very much dependent on our knowledge and perception of its value.
Most of us don’t want dandelions in our lawns – they don’t fit there. But if you place a dandelion plant in your kitchen garden, and cultivate it, it can turn out to be one of your most valuable plants. Dandelions are used to make beer, wine, salads, and natural medicines. Quite simply, if you choose to cultivate dandelions, you will reap their rewards. So, is a dandelion a weed or an herb? You decide. The same can be said for individuals with autism. The value of what you see depends on your level of understanding and accommodation.
The article describes Thorkil’s efforts to link autistic people with employers who need the distinctive skill sets that come with autism. Most employers don’t know what they’re missing. People with autism aren’t defective; they contribute a special sauce to the human experience. Steve Silberman puts it this way in his book NeuroTribes:
One of the most promising developments since the publication of “The Geek Syndrome” has been the emergence of the concept of neurodiversity: the notion that conditions like autism, dyslexia, and attention-deficit/hyperactivity disorder [ADHD] should be regarded as naturally occurring cognitive variations with distinctive strengths that have contributed to the evolution of technology and culture, rather than mere checklists of deficits and dysfunctions.”
After my son’s diagnosis six years ago, I slowly came to the same conclusion and wrote about it here, here, and here. But there is only so much I can do to help the cause—to help neurotypical people understand what it’s like to be autistic and to realize the value autism offers society—because I’m not truly a part of it. Because I am not autistic.
The perspectives I have on people and the world I’ve interacted with thus far in my life are necessarily informed by my [Asperger’s], whether it looks like I’m an Aspie or not. Ultimately, when my friend told me I don’t look autistic, he was essentially affirming my constructed normalcy, my ability to fake it. In high school, I would have relished in this aptitude to appear “same,” and would have taken his remark as a compliment. But I’ve come to realize that each attempt to somehow make myself more “acceptable” to someone else, more lovable, has left me with what is, in the end, a false connection. I don’t want to be judged based on my [autism] alone, but nor do I want it to not matter. I may not “look autistic” from the outside, but if you see with my eyes, I do.
Please read the powerful stories by Wildhood and Garcia, and let me know what you think. And if you’re autistic or the parent of an autistic child and would like to share your story, I’d love to hear from you as well.
Tyler accept his autism far better than his father once did. “It’s a part of me but I don’t find that it’s a big deal, that I have to be talking about it every five seconds,” he says in a video for Autism Speaks that will be released next month with my parenting memoir, Love That Boy. “Like blue eyes: I don’t talk about how I have blue yes. I have autism, that’s it.”
A controversial video of Catholic students clashing with American Indians appeared to tell a simple truth. A second video called that story into question. But neither shows what truly happened.
In a short, viral videoshared widely since Friday, Catholic high-school students visiting Washington, D.C., from Kentucky for the March for Life appeared to confront, and mock, American Indians who had participated in the Indigenous Peoples March, taking place the same day.
By Saturday, the video had been condensed into a single image: One of the students, wearing a “Make America Great Again” hat, smiles before an Omaha tribal elder, a confrontation viewers took as an act of aggression by a group of white youths against an indigenous community—and by extension, people of color more broadly. Online, reaction was swift and certain, with legislators, news outlets, and ordinary people denouncing the students and their actions as brazenly racist.
Next time there’s a viral story, I’ll wait for more facts to emerge.
Like many people who spend too much time on Twitter, I watched with indignation Saturday morning as stories began appearing about a confrontation near the Lincoln Memorial between students from Covington Catholic High School and American Indians from the Indigenous Peoples March. The story felt personal to me; I live a few miles from the high school, and my son attends a nearby all-boys Catholic high school. I texted him right away, ready with a lesson on what the students had done wrong.
“They were menacing a man much older than them,” I told him, “and chanting ‘Build the wall!’ And this smirking kid blocked his path and wouldn’t let him leave.” The short video, the subject of at least two-thirds of my Twitter feed on Saturday, made me cringe, and the smirking kid in particular got to me: His smugness, radiating from under that red MAGA hat, was everything I wanted my teenagers not to be.
How Fyre Fraud and Tidying Up With Marie Kondo capture a precarious cultural moment
The fifth episode of Tidying Up With Marie Kondo, Netflix’s effervescent new reality series, deals with Frank and Matt, a couple living in West Hollywood, California. Both writers, they have a touching love story involving Tinder, a too-small apartment filled with detritus from past roommates, and a burning desire to prove their adulting bona fides. They are, in short, the archetypal Millennial couple. The dramatic hook of the episode is that Frank’s parents are coming to visit for the first time, and Frank wants to impress them, to make them see “that the life we’ve created together is something to be admired.”
Frank and Matt, in other words, want their home to reflect their identities and sense of self (as opposed to the cutlery preferences of the people Matt lived with after college). They’ve internalized the idea that the signifiers of success are primarily visual. “I don’t know that I’ve given [my parents] any reason to respect me as an adult,” Frank agonizes at one point, which is absurd, given his apparently successful career and adorable relationship. “I’m organized in some aspects of my life. Like, professionally, my email inbox is organized, I’m great. And I just get frustrated with myself that I haven’t translated that into my home life. It feels like I give it all at work and then I come home and am like, pmph.” He makes a gesture like a deflated balloon.
Home to vibrantly colored, tiny creatures, the ecosystems floating on the ocean’s surface remain all but unknown.
Imagine you’re on a small boat in the middle of the open ocean, surrounded by what looks like a raft of plastic. Now flip the whole world upside down. You remain comfortably attached to your seat—the abyss towers above you, and all around, stretching up from the water’s surface, is an electric-blue meadow of life. What you thought was plastic is actually a living island. This meadow is made up of a diverse collection of animals. The most abundant are blue buttons and by-the-wind sailors, with bright-blue bodies that dot the sky like suns, and deep-purple snails found in patches so dense one scientist described collecting more than 1,000 in 20 minutes.
This is the neuston, a whole ecosystem living at the ocean’s surface. I once stumbled upon a raft of neuston when a storm blew it ashore in California. Many neustonic animals are vibrant highlighter colors, and the sand was saturated in bright blues and pale pinks. Together, these small creatures may function like upside-down coral reefs: an oasis of shelter and life far out to sea. As far back as the Cold War era, scientists were describing these colorful and important ecosystems, yet they still remain all but unknown. But now, as efforts to clean the ocean of plastic start up, our ignorance is putting this ecosystem at risk.
From West Virginia to Los Angeles, educators are ushering in a new era of labor activism.
In Los Angeles, more than 30,000 teachers remain on strike; it took union and city officials more than a week to eke out a tentative agreement that, they announced Tuesday morning, will likely bring them back to their classrooms this week. Last Friday, teachers from a handful of public schools in Oakland, California, staged a one-day walkout, too, and they’re planning for another demonstration this Wednesday. Meanwhile, a citywide strike is brewing a few states over in Denver, as could soon be the case in Virginia, where teachers are gearing up for a one-day rally in Richmond later this month. An educator uprising is even percolating in Chicago, where the collective-bargaining process is just getting started: “We intend to bargain hard,” the teachers’ union’s president told the Chicago Tribune last week.
Insights into the little-studied realm of last words
Mort Felix liked to say that his name, when read as two Latin words, meant “happy death.” When he was sick with the flu, he used to jokingly remind his wife, Susan, that he wanted Beethoven’s “Ode to Joy” played at his deathbed. But when his life’s end arrived at the age of 77, he lay in his study in his Berkeley, California, home, his body besieged by cancer and his consciousness cradled in morphine, uninterested in music and refusing food as he dwindled away over three weeks in 2012. “Enough,” he told Susan. “Thank you, and I love you, and enough.” When she came downstairs the next morning, she found Felix dead.
During those three weeks, Felix had talked. He was a clinical psychologist who had also spent a lifetime writing poetry, and though his end-of-life speech often didn’t make sense, it seemed to draw from his attention to language. “There’s so much so in sorrow,” he said at one point. “Let me down from here,” he said at another. “I’ve lost my modality.” To the surprise of his family members, the lifelong atheist also began hallucinating angels and complaining about the crowded room—even though no one was there.
The internet once made it easier to slip from one domain to another. Is there a way to preserve that vital freedom?
Has the internet afforded humans more freedom, or less?
That’s a question I’m pondering anew thanks to the University of Michigan philosophy professor Elizabeth Anderson, who provoked the thought while being interviewed by Nathan Heller for a recent profile in The New Yorker.
After Europe’s religious wars, Anderson mused, as centuries of conflicts between Catholics and Protestants gave way to a liberal, live-and-let-live order that tolerated freedom of religion, something remarkable happened:
People now have the freedom to have crosscutting identities in different domains. At church, I’m one thing. At work, I’m something else. I’m something else at home or with my friends. The ability not to have an identity that one carries from sphere to sphere but, rather, to be able to slip in and adopt whatever values and norms are appropriate while retaining one’s identities in other domains? That is what it is to be free.
The 2020 candidate is pitching herself as the one who can actually put together a winning coalition of voters, a goal Democrats have obsessed over since their shocker loss in 2016.
Kamala Harris is a half-Jamaican, half-Indian woman from Oakland, California, the daughter of two UC Berkeley grad students. She went to high school in Montreal. She married a wealthy, white, Jewish lawyer later in life, and didn’t have kids of her own. When she’s not in Washington, she splits her time between San Francisco and Los Angeles. Her first name is Sanskrit and gets mispronounced all the time. She was being mentioned as a front-runner presidential candidate before she’d even headed over to her Senate victory party, all of two years and two months ago.
She is not, by biographical measures, representative of what most would see as the typical American experience. But Harris launched her presidential campaign Monday with a challenge to the rest of the field that—as she put it to me at the press conference she held in the afternoon in the lobby of the Interdisciplinary Research Building at her alma mater, Howard University—candidates who want to win have to speak to “the complexities of each of our lives, and pay equal attention to their needs.”
Starting the process will rein in a president who is undermining American ideals—and bring the debate about his fitness for office into Congress, where it belongs.
On January 20, 2017,Donald Trump stood on the steps of the Capitol, raised his right hand, and solemnly swore to faithfully execute the office of president of the United States and, to the best of his ability, to preserve, protect, and defend the Constitution of the United States. He has not kept that promise.
Instead, he has mounted a concerted challenge to the separation of powers, to the rule of law, and to the civil liberties enshrined in our founding documents. He has purposefully inflamed America’s divisions. He has set himself against the American idea, the principle that all of us—of every race, gender, and creed—are created equal.
I am familiar with the ambiguities of video evidence—for example, through this piece I wrote from Israel more than 15 years ago, “Who Shot Mohammed al-Dura,” about the battle over the meaning of an inflammatory video there; or these two separate Twitter threads, first here then here, in the past few days from James Martin, a Jesuit priest and editor for America magazine, about the meanings of the multiple videos from the confrontation on the National Mall this past weekend.
I now believe that the “meaning” or “truth” of this recent encounter is likely to remain as contested as anything in the al-Dura case. The more additional evidence comes in, the more clearly it is taken to “prove” one interpretation of the case, or its opposite. “You must not have seen the full videos” is meant to be a conclusory statement, either way.