Reporter's Notebook

Stories of Misunderstanding Women's Pain
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Below are all the stories from female readers recalling times when doctors dismissed, downplayed, or misdiagnosed their painful health conditions. The series was sparked by Joe Fassler’s account of his wife experiencing an ovarian torsion that went undiagnosed for an excruciatingly long time. To join, email hello@theatlantic.com. (If you’re a doctor or other medical professional who has a perspective to share, it would be great to hear from the other side of the examination table as well.)

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An Ectopic Emergency

A reader revives the thread of women telling personal stories of how their painful health condition went undetected or misunderstood by medical officials:

I read Joe Fassler’s piece last month, and just heard his interview on NPR. My circumstances 11 years ago were slightly different and I nearly died, and I say that with absolutely no exaggeration. It infuriates me to hear this is all too common.

In 2004, I recently moved back to my hometown (Kansas City) and started a new job. On a Saturday night I was getting ready to go out and meet friends for drinks. Shortly before I left my apartment, I doubled over in indescribable pain.

Our reader series of women recounting stories of medical pain—and the doctors who often misdiagnosis it—ran in eight installments last fall. But suddenly this week we got two more emails, so perhaps the series is still getting passed around a lot. In any case, these new stories are compelling in their own right. This reader struggled with multiple health problems:

When I was seven months pregnant with my third child, my doctor put me on bed rest because my cervix was basically non-existent it was so thin, exactly like my previous two pregnancies (both of which I was on bed rest, and both of which I delivered four weeks early). Four weeks before my due date with baby #3, I spent the better part of the day in excruciating agony but refused to go to the hospital because it did not feel like labor pains.

My husband took me anyway, and they determined that I must be in labor, even though I wasn’t dilated at all and kept trying to tell them the pain was in a different part of my abdomen—more under my ribs and in my back. A medicine was given to me to start labor and a few hours later my son was born four weeks prematurely. (He is eight years old now and still suffers with his lungs and other physical issues due to his early delivery.)

But my pain didn’t go away.

A reader, Abby Norman, revives one of the most popular discussion threads in Notes thus far—on female medical pain:

I’m so thankful for your reader series, sparked by Joe Fassler’s piece, which was sent to me by my agent. I’m currently under contract with Nation Books writing about my experience with this exact phenomenon: the normalization of female pain in our culture that leads to these harrowing stories of mis—or missed—diagnosis. I’ve written about it frequently, specifically as it pertains to endometriosis. I also run a Medium publication called Ask Me About My Uterus, where I interview women about their menstrual history and curate essays (I wish some of your contributors to this series would contribute—those stories made me tear up with recognition and overflowing with empathy.)

Womanhood is a culture held together through our physical pain, yet the medical profession and society as a whole still refuses to acknowledge it.