The Atlantic convened experts for a discussion of the rare disease patient experience and why it is so unique. We probed these themes through conversations seeking to explore how genomics and other cutting-edge clinical innovations may transform the future of health care.
- Tuesday, February 14
- 6:30 a.m.WelcomeJocelyn Miller, AtlanticLIVE
Tolga Tanguler, President of North America, Pfizer Rare Disease
- 6:40 a.m.Looking for a Cure: The Rare Disease Patient Experience and Lysosomal Storage DiseaseCara O’Neill, Co-founder and Vice President, Cure Sanfilippo Foundation
Elsa Shapiro, Professor of Pediatrics and Neurology, Division of Pediatric Behavioral Neuroscience, University of Minnesota
With Steve Clemons, Washington Editor at Large,The Atlantic
- 7:05 a.m.When There's No Diagnosis: One Rare Disease Researcher's Hunt for AnswersHudson Freeze, Director of the Human Genetics Program, Sanford Burnham Prebys Medical Discovery Institute
Diana Papworth, Mother of Children with CDG
Shaun Papworth, CDG Patient
With Steve Clemons, The Atlantic
- 7:30 a.m.ClosingJocelyn Miller, AtlanticLIVE
We The People
Featuring Georgetown University's
John J. DeGioia and
The Atlantic's Steve Clemons
In a series of conversations, The Atlantic will explore civitas, the contract binding all citizens together.
The Formative Years: What's Next for Early Care and Education? An Atlantic Next America Forum
In this Next America forum, The Atlantic will convene key policymakers, local officials, stakeholders and experts to examine the future of early care and education policy.
Atlantic Exchange featuring Helene Cooper and Jeffrey Goldberg
New York Times correspondent Helene Cooper will join The Atlantic’s Editor in Chief Jeffrey Goldberg to discuss her new book on work of Liberian President Ellen Johnson Sirleaf and her successful mobilization of a coalition built on the grassroots foundation of female voters.