The Atlantic convened experts for a discussion of the rare disease patient experience and why it is so unique. We probed these themes through conversations seeking to explore how genomics and other cutting-edge clinical innovations may transform the future of health care.
- Tuesday, February 14
- 6:30 a.m.WelcomeJocelyn Miller, AtlanticLIVE
Tolga Tanguler, President of North America, Pfizer Rare Disease
- 6:40 a.m.Looking for a Cure: The Rare Disease Patient Experience and Lysosomal Storage DiseaseCara O’Neill, Co-founder and Vice President, Cure Sanfilippo Foundation
Elsa Shapiro, Professor of Pediatrics and Neurology, Division of Pediatric Behavioral Neuroscience, University of Minnesota
With Steve Clemons, Washington Editor at Large,The Atlantic
- 7:05 a.m.When There's No Diagnosis: One Rare Disease Researcher's Hunt for AnswersHudson Freeze, Director of the Human Genetics Program, Sanford Burnham Prebys Medical Discovery Institute
Diana Papworth, Mother of Children with CDG
Shaun Papworth, CDG Patient
With Steve Clemons, The Atlantic
- 7:30 a.m.ClosingJocelyn Miller, AtlanticLIVE
Featuring Graham Allison
and Jeffrey Goldberg
Graham Allison, Director of Harvard University's Belfer Center for Science and International Affairs, and author of Destined for War: Can America and China Escape Thucydides’s Trap?, will join The Atlantic’s Editor in Chief Jeffrey Goldberg to explore the US-China relationship and see how war in East Asia can be avoided.
The Next Drugs:
An Atlantic Policy Update on Biosimilars
The Atlantic will convene key stakeholders to discuss the state of and future for biosimilars.