"Over all the years that followed, I found myself thinking from time to time of that picture, my hand over the baby's mouth. I knew then, and I still think now, that the right thing to do would have been to kill that baby."
Like a morbid time capsule from the mind of an elder New York psychiatrist, a report surfaced this week in which Dr. Fredric Neuman essentially confesses to criminal breaches of medical ethics. His essay "The Cyclops Child," which appeared on the website of the journal Psychology Today, recounts the dishonesty and cruelty surrounding the brief existence of a child with severe birth defects. Compounding the offenses detailed in the story itself, Dr. Neuman uses dehumanizing terminology -- referring to the infant as a "monster" -- and focuses disproportionately on the hardship endured by hospital staff, as opposed to the dying child (or "it," according to the author). An anachronism of some unadulterated views from a voice of the medicinal community circa 1960, "The Cyclops Child" is an offending document in itself.
I will summarize here the critical facts resurrected by Dr. Neuman, but please do read his entire essay as well. While he withheld the specifics, I estimate that the hospital was St. Vincent's (now closed), and the year was 1959 or 1960 (based on my review of his curriculum vitae). The essay -- which catalogues what would today be considered kidnapping, assault and possibly murder -- shocks our modern sensibilities. "As a person with disabilities, I find this entire post chilling," one of Dr. Neuman's readers wrote. "I hope the NY state medical board investigates the physicians involved and takes appropriate action," chimed in another.
Here's what happened. A mother gave birth to an infant with a fatal developmental defect called holoprosencephaly. Infants born today with this condition are almost unheard of, as most women will opt to abort the pregnancy when the condition is identified on an early ultrasound. Fifty years ago, women didn't have this option. They were treated by obstetricians who felt that they operated on a higher plane than the rest of us, paternalistically keeping information from patients and limiting options however they saw fit. In this case, the obstetrician decided the parents should not know that the baby was born with the condition. Instead, he and the rest of the team lied to the parents, telling them their baby was dead.
A word about this baby's condition, holoprosencephaly. As humans develop in the womb from a bundle of cells into distinct tissues and organs, the nervous system emerges from a structure called the "neural tube." In rare instances that doesn't form appropriately. In the case of holoprosencephaly, a defect in the neural tube occurs at the head, and various midline structures like the brain, eyes, and mouth may not fully form. In this case, Dr. Neuman describes the deformity using "cyclops" -- which is actually a valid medical term, but is used here outside of the appropriate pathological context -- in describing eye tissue that did not separate into two distinct eyes. It is disturbing that the term holoprosencephaly never occurs in his essay.
The baby is treated as an object and given no gender, referred to as "it." In the events that followed there is no indication that he received any palliative treatment, as would be the standard today (comfort care, including pain management).
The hospital staff expected and hoped that the newborn would soon pass away, but he did not. They left the child ignored in the back of the hospital nursery. Doctors and nurses waited for him to starve. An excruciating death watch followed that dragged on for about 13 days, as Dr. Neuman notes in the comments section of his piece. The child's cries anguished nursery staff who kept the dark secret. Dr. Neuman wrote:
"There was a price to be paid. Dying though it might be, the staff still had to tend to it, to change it, to clean it, to hold it in repeated attempts to comfort it. The baby was suffering, and so was everyone else. Earlier, I had caught an aide crying. A couple of nurses had stayed home that day. It was at that point that I began to think about killing the baby."
Dr. Neuman did not kill the baby. But he did torture him at the direction of his senior resident, who asked him to practice a finger amputation procedure on the child:
"The way you treat a baby's extra fingers is to tie a ligature, a string, as tight as you can around the base of the finger. The blood supply is cut off, and after a while the finger falls off.
When I went over to the baby, it was lying quietly in its bed. It did not object when I picked up its hand. But when I tied the ligature around its finger and pulled tightly, it screamed."
The newborn finally died. The parents of the child never knew of the suffering or the needless procedure. Dr. Neuman still believes he should have euthanized the child:
Over all the years that followed, I found myself thinking from time to time of that picture, my hand over the baby's mouth. I knew then, and I still think now, that the right thing to do would have been to kill that baby. It wasn't really a baby; it just sounded like a baby--that's what I tell myself. But I would like to stop thinking about it. After all, the whole thing happened over fifty years ago.
I'd compare Dr. Neuman's sickening tale to the work of Edgar Allen Poe, except that Dr. Neuman has not written a piece of creative fiction. This is the truth, we're told. So, has Psychology Today just published potential evidence in a trial for murder?
That's possible, but in no way probable, says Professor Martin Guggenheim of the New York University School of Law. Despite the fact that the statute of limitations doesn't run out on homicide, Guggenheim can't imagine a city prosecutor being interested in the case today. "Particularly because St. Vincent's is no more, I'd be more than a bit surprised if a prosecutor would do anything about this," Guggenheim says. All the other crimes - the kidnapping, the assault, the lies - are far too dated to be actionable.
Disability scholar Rebecca Garden, who teaches medical bioethics at Upstate Medical University, points out that despite the prevailing 1960's attitudes in this essay, deciding when life is worth living is still a contested issue. Disability rights advocates are still dealing with this on a daily basis. In this context, she feels Dr. Neuman's blog post is "distressing on many levels."
"This piece seems to be a complex and conflicted mix of confession, provocation, and defense or apologia," Professor Garden told me. Parts of "The Cylops Child" are written in the present tense. There is a passage where Dr. Neuman suggests that an obstetrician could smother such a baby. His observation that "such things happen" isn't confined to the past, Garden observes.
How can we fathom Dr. Neuman repeatedly describing this child as a monster? According to Laurence McCullough of the Center for Medical Ethics and Health Policy at Baylor College of Medicine, we're merely witnessing equally valid discourse from another era. Our modern scientific understanding that such developmental anomalies are errors of reproductive development derived from our evolutionary biology carries little human meaning, Prof. McCullough points out. A monster was considered "a portent sent by the Gods to punish transgression."
At least that's something people can somehow grasp and justify. "What may, at first, strike us as a wrong-headed or even repellent discourse of the past... turns out to have a distinct advantage over our own," McCullough says.
Though I would like to think of "The Cyclops Child" as a dusty artifact, it nonetheless appeared on my computer in 2012, from the mind of person living contemporaneously. I find myself trying to construct a narrative around it, to explain and contain it. Maybe Professor McCullough is right that "human scale" explanations at least offer us a framework to comprehend the things that distress us.
Alright, then. I'll believe the essay is a monstrosity published by the Gods to punish one doctor's fifty-year-old transgression.
She lived with us for 56 years. She raised me and my siblings without pay. I was 11, a typical American kid, before I realized who she was.
The ashes filled a black plastic box about the size of a toaster. It weighed three and a half pounds. I put it in a canvas tote bag and packed it in my suitcase this past July for the transpacific flight to Manila. From there I would travel by car to a rural village. When I arrived, I would hand over all that was left of the woman who had spent 56 years as a slave in my family’s household.
Maine attached work requirements and time limits to its safety net, intensifying poverty in the state.
ORLAND, Maine—In the eyes of the state of Maine, Laurie Kane is an able-bodied adult without dependents, and thus ineligible for most forms of government support. In her own eyes, it is hard to see how she is going to find housing, work, and stability without help.
Kane is struggling to put her life back together amid a spell of homelessness that has lasted for three years. She has a severe anxiety condition, along with other health problems, and had suffered a panic attack on the day I met her. But she had not managed to sign up for MaineCare, the state’s Medicaid program, because she cannot get a doctor to certify her as being disabled. That’s not because a doctor has evaluated her and found her to be fine, but because she’s been unable to get a doctor’s appointment. “I was denied MaineCare because I’m considered an able-bodied person,” she told me. “A lot of people say, ‘Well, you can just get free care.’ They say, ‘You can go to a clinic with a sliding-fee scale, which would be $20 a visit.’ But what if I can’t come up with $20?”
The condition has long been considered untreatable. Experts can spot it in a child as young as 3 or 4. But a new clinical approach offers hope.
This is a good day, Samantha tells me: 10 on a scale of 10. We’re sitting in a conference room at the San Marcos Treatment Center, just south of Austin, Texas, a space that has witnessed countless difficult conversations between troubled children, their worried parents, and clinical therapists. But today promises unalloyed joy. Samantha’s mother is visiting from Idaho, as she does every six weeks, which means lunch off campus and an excursion to Target. The girl needs supplies: new jeans, yoga pants, nail polish.
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At 11, Samantha is just over 5 feet tall and has wavy black hair and a steady gaze. She flashes a smile when I ask about her favorite subject (history), and grimaces when I ask about her least favorite (math). She seems poised and cheerful, a normal preteen. But when we steer into uncomfortable territory—the events that led her to this juvenile-treatment facility nearly 2,000 miles from her family—Samantha hesitates and looks down at her hands. “I wanted the whole world to myself,” she says. “So I made a whole entire book about how to hurt people.”
The president’s business tells lawmakers it is too difficult to track all its foreign revenue in accordance with constitutional requirements, and it hasn’t asked Congress for a permission slip.
Days before taking office, Donald Trump said his company would donate all profits from foreign governments to the U.S. Treasury, part of an effort to avoid even the appearance of a conflict with the Constitution’s emoluments clause.
Now, however, the Trump Organization is telling Congress that determining exactly how much of its profits come from foreign governments is simply more trouble than it’s worth.
In response to a document request from the House Oversight Committee, Trump’s company sent a copy of an eight-page pamphlet detailing how it plans to track payments it receives from foreign governments at the firm’s many hotels, golf courses, and restaurants across the globe. But while the Trump Organization said it would set aside all money it collects from customers that identify themselves as representing a foreign government, it would not undertake a more intensive effort to determine if a payment would violate the Constitution’s prohibition on public office holders accepting an “emolument” from a foreign state.
In an assault in Montana, two very different ideas of masculinity
On Wednesday the Republican congressional candidate in Montana’s special election Greg Gianforte physically assaulted Ben Jacobs, a reporter from The Guardian, according to Jacobs himself and Fox News reporters who were present.
Jacobs recorded the interaction and published the audio, tweeting “Listen to me get body-slammed in Montana.”
The question Jacobs had asked Gianforte was about the Congressional Budget Office’s score of the new health-care bill. Gianforte can be heard saying, “I’m sick and tired of you guys,” and then there’s what sounds like an altercation, and then “The last time you came here you did the same thing. Get the hell out of here. Get the hell out of here.” Then Jacobs says, as if narrating for the audio recorder, “You just body-slammed me and broke my glasses.”
Speaking in front of the leaders of its member-nations, the president fails to make clear the United States still has the alliance’s back.
Updated at 5:07 p.m.
BRUSSELS — President Trump did not explicitly endorse the mutual-aid clause of the North Atlantic Treaty at the NATO summit on Thursday despite previous indications that he was planning to do so, keeping in place the cloud of ambiguity hanging over the relationship between the United States and the alliance.
Speaking in front of a 9/11 and Article 5 Memorial at the new NATO headquarters, Trump praised NATO’s response to the 9/11 attacks and spoke of “the commitments that bind us together as one.”
But he did not specifically commit to honor Article 5, which stipulates that other NATO allies must come to the aid of an ally under attack if it is invoked.
The only time in history that Article 5 has been invoked was after the September 11 attacks, a fact that Trump mentioned. The memorial Trump was dedicating is a piece of steel from the North Tower that fell during the attacks.
When the FBI discovered a network of Bosnian-Americans giving support to terrorists, they also discovered Abdullah Ramo Pazara, a U.S. citizen and a battalion commander in Syria.
Abdullah Ramo Pazara had a craving for packets of instant hot cocoa. The Bosnian-American former truck driver was, at the time, a commander of an Islamic State tank battalion in Syria. Apparently, even foreign fighters who reject their former lives in Western countries for a chance at martyrdom for ISIS sometimes long for the creature comforts of their previous homes.
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In 2013, six Bosnian immigrants in the United States allegedly sent money, riflescopes, knives, military equipment, and other supplies to jihadists in Syria and Iraq through intermediaries in Bosnia and Turkey. According to the U.S. government’s allegations, individual ISIS fighters would make specific requests—mostly for money and military equipment—and the group would then raise funds and send supplies to Syria. The requests included what was surely an unexpected revelation of nostalgia—packets of Swiss Miss hot cocoa. By sending the cocoa mix and other supplies, federal prosecutors argue, these U.S.-based Bosnians provided what is known as “material support” to terrorists, in violation of the Patriot Act.
It’s not all Donald Trump’s fault. But he has in every way already made the situation gravely worse.
“In battle, nothing is ever as good or bad as the first reports of excited men would have it.”
—Field Marshal Viscount Slim
Let’s hope that same caution applies to presidential transition geopolitics too, because the first reports from the Trump transition are very bad indeed.
Among America’s oldest and truest allies, the reaction to the election of Donald Trump has ranged from horror to terror, sometimes including large elements of each. Nowhere, though, does the reaction look more dangerous than inside the most powerful state on the European continent, Germany.
The morning after Donald Trump’s victory, German Chancellor Angela Merkel released a cooly diffident pledge of cooperation to the new American president. The key passage:
Republican candidate Greg Gianforte has been cited for misdemeanor assault after a journalist accused Gianforte of “body slamming” him in response to a question about GOP health-care legislation in Congress.
Updated on May 25, 2017 at 3:00 p.m. EST
The closely watched Montana special election on Thursday has been highly anticipated as a potential referendum on Donald Trump’s presidency and a test of whether Democrats can win back congressional seats in conservative and rural parts of the country.
But the race was thrown into turmoil Wednesday evening into early Thursday morning, when a Montana sheriff’s office cited GOP candidate Greg Gianforte for misdemeanor assault, after journalist Ben Jacobs accused Gianforte of “body slamming” him after he asked the Montana Republican about the recently passed GOP health-care bill. The Gianforte campaign disputed the reporters’ account, but it was corroborated by eyewitnesses at the scene of the incident.
A recent push for diversity has been blamed for weak print sales, but the company’s decades-old business practices are the true culprit.
Marvel Comics has been having a rough time lately. Readers and critics met last year’s Civil War 2—a blockbuster crossover event (and aspiritual tie-in to the year’s big Marvel movie)—with disinterest and scorn. Two years of plummeting print comics sales culminated in a February during which only one ongoing superhero title managed to sell more than 50,000 copies.* Three crossover events designed to pump up excitement came and went with little fanfare, while the lead-up to 2017’s blockbuster crossover Secret Empire—where a fascist Captain America subverts and conquers the United States—sparked such a negative response that the company later put out a statement imploring readers to buy the whole thing before judging it. On March 30, a battered Marvel decided to try and get to the bottom of the problem with a retailer summit—and promptly stuck its foot in its mouth.