"Over all the years that followed, I found myself thinking from time to time of that picture, my hand over the baby's mouth. I knew then, and I still think now, that the right thing to do would have been to kill that baby."
Like a morbid time capsule from the mind of an elder New York psychiatrist, a report surfaced this week in which Dr. Fredric Neuman essentially confesses to criminal breaches of medical ethics. His essay "The Cyclops Child," which appeared on the website of the journal Psychology Today, recounts the dishonesty and cruelty surrounding the brief existence of a child with severe birth defects. Compounding the offenses detailed in the story itself, Dr. Neuman uses dehumanizing terminology -- referring to the infant as a "monster" -- and focuses disproportionately on the hardship endured by hospital staff, as opposed to the dying child (or "it," according to the author). An anachronism of some unadulterated views from a voice of the medicinal community circa 1960, "The Cyclops Child" is an offending document in itself.
I will summarize here the critical facts resurrected by Dr. Neuman, but please do read his entire essay as well. While he withheld the specifics, I estimate that the hospital was St. Vincent's (now closed), and the year was 1959 or 1960 (based on my review of his curriculum vitae). The essay -- which catalogues what would today be considered kidnapping, assault and possibly murder -- shocks our modern sensibilities. "As a person with disabilities, I find this entire post chilling," one of Dr. Neuman's readers wrote. "I hope the NY state medical board investigates the physicians involved and takes appropriate action," chimed in another.
Here's what happened. A mother gave birth to an infant with a fatal developmental defect called holoprosencephaly. Infants born today with this condition are almost unheard of, as most women will opt to abort the pregnancy when the condition is identified on an early ultrasound. Fifty years ago, women didn't have this option. They were treated by obstetricians who felt that they operated on a higher plane than the rest of us, paternalistically keeping information from patients and limiting options however they saw fit. In this case, the obstetrician decided the parents should not know that the baby was born with the condition. Instead, he and the rest of the team lied to the parents, telling them their baby was dead.
A word about this baby's condition, holoprosencephaly. As humans develop in the womb from a bundle of cells into distinct tissues and organs, the nervous system emerges from a structure called the "neural tube." In rare instances that doesn't form appropriately. In the case of holoprosencephaly, a defect in the neural tube occurs at the head, and various midline structures like the brain, eyes, and mouth may not fully form. In this case, Dr. Neuman describes the deformity using "cyclops" -- which is actually a valid medical term, but is used here outside of the appropriate pathological context -- in describing eye tissue that did not separate into two distinct eyes. It is disturbing that the term holoprosencephaly never occurs in his essay.
The baby is treated as an object and given no gender, referred to as "it." In the events that followed there is no indication that he received any palliative treatment, as would be the standard today (comfort care, including pain management).
The hospital staff expected and hoped that the newborn would soon pass away, but he did not. They left the child ignored in the back of the hospital nursery. Doctors and nurses waited for him to starve. An excruciating death watch followed that dragged on for about 13 days, as Dr. Neuman notes in the comments section of his piece. The child's cries anguished nursery staff who kept the dark secret. Dr. Neuman wrote:
"There was a price to be paid. Dying though it might be, the staff still had to tend to it, to change it, to clean it, to hold it in repeated attempts to comfort it. The baby was suffering, and so was everyone else. Earlier, I had caught an aide crying. A couple of nurses had stayed home that day. It was at that point that I began to think about killing the baby."
Dr. Neuman did not kill the baby. But he did torture him at the direction of his senior resident, who asked him to practice a finger amputation procedure on the child:
"The way you treat a baby's extra fingers is to tie a ligature, a string, as tight as you can around the base of the finger. The blood supply is cut off, and after a while the finger falls off.
When I went over to the baby, it was lying quietly in its bed. It did not object when I picked up its hand. But when I tied the ligature around its finger and pulled tightly, it screamed."
The newborn finally died. The parents of the child never knew of the suffering or the needless procedure. Dr. Neuman still believes he should have euthanized the child:
Over all the years that followed, I found myself thinking from time to time of that picture, my hand over the baby's mouth. I knew then, and I still think now, that the right thing to do would have been to kill that baby. It wasn't really a baby; it just sounded like a baby--that's what I tell myself. But I would like to stop thinking about it. After all, the whole thing happened over fifty years ago.
I'd compare Dr. Neuman's sickening tale to the work of Edgar Allen Poe, except that Dr. Neuman has not written a piece of creative fiction. This is the truth, we're told. So, has Psychology Today just published potential evidence in a trial for murder?
That's possible, but in no way probable, says Professor Martin Guggenheim of the New York University School of Law. Despite the fact that the statute of limitations doesn't run out on homicide, Guggenheim can't imagine a city prosecutor being interested in the case today. "Particularly because St. Vincent's is no more, I'd be more than a bit surprised if a prosecutor would do anything about this," Guggenheim says. All the other crimes - the kidnapping, the assault, the lies - are far too dated to be actionable.
Disability scholar Rebecca Garden, who teaches medical bioethics at Upstate Medical University, points out that despite the prevailing 1960's attitudes in this essay, deciding when life is worth living is still a contested issue. Disability rights advocates are still dealing with this on a daily basis. In this context, she feels Dr. Neuman's blog post is "distressing on many levels."
"This piece seems to be a complex and conflicted mix of confession, provocation, and defense or apologia," Professor Garden told me. Parts of "The Cylops Child" are written in the present tense. There is a passage where Dr. Neuman suggests that an obstetrician could smother such a baby. His observation that "such things happen" isn't confined to the past, Garden observes.
How can we fathom Dr. Neuman repeatedly describing this child as a monster? According to Laurence McCullough of the Center for Medical Ethics and Health Policy at Baylor College of Medicine, we're merely witnessing equally valid discourse from another era. Our modern scientific understanding that such developmental anomalies are errors of reproductive development derived from our evolutionary biology carries little human meaning, Prof. McCullough points out. A monster was considered "a portent sent by the Gods to punish transgression."
At least that's something people can somehow grasp and justify. "What may, at first, strike us as a wrong-headed or even repellent discourse of the past... turns out to have a distinct advantage over our own," McCullough says.
Though I would like to think of "The Cyclops Child" as a dusty artifact, it nonetheless appeared on my computer in 2012, from the mind of person living contemporaneously. I find myself trying to construct a narrative around it, to explain and contain it. Maybe Professor McCullough is right that "human scale" explanations at least offer us a framework to comprehend the things that distress us.
Alright, then. I'll believe the essay is a monstrosity published by the Gods to punish one doctor's fifty-year-old transgression.
As Trump considers military options, he’s drawing unenforceable red lines.
Speaking before the UN General Assembly today, President Donald Trump announced that, unless North Korea gives up its nuclear weapons and ballistic missile programs, “the United States will have no choice but to totally destroy” the country. He sounded almost excited as he threatened, “Rocket Man is on a suicide mission for himself and for his regime.”
North Korea is a serious problem, and not one of Trump’s making—the last four American presidents failed to impede North Korea’s progress towards a nuclear weapon. President George H.W. Bush took unilateral action, removing U.S. nuclear weapons and reducing America’s troop levels in the region, hoping to incentivize good behavior; Presidents Bill Clinton and George W. Bush tried to negotiate restrictions; President Barack Obama mostly averted his eyes. North Korea defied them all.
The foundation of Donald Trump’s presidency is the negation of Barack Obama’s legacy.
It is insufficient to statethe obvious of Donald Trump: that he is a white man who would not be president were it not for this fact. With one immediate exception, Trump’s predecessors made their way to high office through the passive power of whiteness—that bloody heirloom which cannot ensure mastery of all events but can conjure a tailwind for most of them. Land theft and human plunder cleared the grounds for Trump’s forefathers and barred others from it. Once upon the field, these men became soldiers, statesmen, and scholars; held court in Paris; presided at Princeton; advanced into the Wilderness and then into the White House. Their individual triumphs made this exclusive party seem above America’s founding sins, and it was forgotten that the former was in fact bound to the latter, that all their victories had transpired on cleared grounds. No such elegant detachment can be attributed to Donald Trump—a president who, more than any other, has made the awful inheritance explicit.
More comfortable online than out partying, post-Millennials are safer, physically, than adolescents have ever been. But they’re on the brink of a mental-health crisis.
One day last summer, around noon, I called Athena, a 13-year-old who lives in Houston, Texas. She answered her phone—she’s had an iPhone since she was 11—sounding as if she’d just woken up. We chatted about her favorite songs and TV shows, and I asked her what she likes to do with her friends. “We go to the mall,” she said. “Do your parents drop you off?,” I asked, recalling my own middle-school days, in the 1980s, when I’d enjoy a few parent-free hours shopping with my friends. “No—I go with my family,” she replied. “We’ll go with my mom and brothers and walk a little behind them. I just have to tell my mom where we’re going. I have to check in every hour or every 30 minutes.”
Those mall trips are infrequent—about once a month. More often, Athena and her friends spend time together on their phones, unchaperoned. Unlike the teens of my generation, who might have spent an evening tying up the family landline with gossip, they talk on Snapchat, the smartphone app that allows users to send pictures and videos that quickly disappear. They make sure to keep up their Snapstreaks, which show how many days in a row they have Snapchatted with each other. Sometimes they save screenshots of particularly ridiculous pictures of friends. “It’s good blackmail,” Athena said. (Because she’s a minor, I’m not using her real name.) She told me she’d spent most of the summer hanging out alone in her room with her phone. That’s just the way her generation is, she said. “We didn’t have a choice to know any life without iPads or iPhones. I think we like our phones more than we like actual people.”
Old French Canadian genealogy records reveal how a harmful mutation can hide from natural selection in a mother's DNA.
The first King’s Daughters—or filles du roi—arrived in New France in 1663, and 800 more would follow over the next decade. Given their numbers, they were not literally the king’s daughters of course.
They were poor and usually of common birth, but their passage and dowry were indeed paid by King Louis XIV for the purpose of empire building: These women were to marry male colonists and have many children, thus strengthening France’s hold on North America.
And so they did. The filles du roi became the founding mothers of French Canadians, for whom these women are a source of historical pride. A grand old restaurant in Montreal was named after the filles du roi. So is a roller-derby team. French Canadians can usually trace their ancestry back to one or more of these women. “French Canadian genealogy is so well documented, it’s just a piece of cake to trace any line you have,” says Susan Colby, a retired archaeologist who comes from a French Canadian family and has done some of that tracing herself.
Millennials may have loved the big-box chain as kids, but as parents, they’d rather shop online.
In a year of constant bad news across the retail sector, Toys “R” Us has become a little engine that couldn’t, filing for bankruptcy in a federal court in Virginia Monday night. As part of its bankruptcy plan, the company will continue to operate most of its stores through the holiday season, when the company has traditionally pulled in the most revenue.
The bankruptcy marks a new phase for a chain that has struggled to find its way online, a vulnerability for a company whose primary customers are parents. While the convenience of online shopping is a boon to most consumers, for parents it may be even more of a draw. According to the Bureau of Labor Statistics, the vast majority of households do not have a stay-at-home parent. After a full day of work, there’s dinner to be served, baths to be drawn, and bedtime rituals to be undertaken at length. Squeezing in a trip to the store is often impossible.
The president’s defenders say reported surveillance of Paul Manafort justifies an accusation against Barack Obama, but they overstate the facts.
Viewed from the most obvious angle, the latest scoops about special counsel Robert Mueller investigating Paul Manafort are at best neutral news for the president and more likely bad news.
The new reports say that U.S. officials got warrants to surveil Manafort, Trump’s former campaign chairman, before and after the 2016 election under the Foreign Intelligence Surveillance Act, and that Mueller told Manafort he would soon be indicted. At the least, this means Trump made the dubious decision to hire a man with shadowy ties as a top aide. At worst, it could mean Mueller wants to flip Manafort into a witness against Trump or his campaign.
But viewed from a more oblique angle, could the fresh revelations actually be good news for Trump? So far several of the president’s allies argue that this represents vindication for Trump’s thus-far-unproven allegation that President Barack Obama improperly surveilled him.
Donald Trump used his first address at the United Nations to redefine the idea of sovereignty.
Donald Trump’s first speech to the United Nations can best be understood as a response to his predecessor’s final one. On September 20, 2016, Barack Obama told the UN General Assembly that “at this moment we all face a choice. We can choose to press forward with a better model of cooperation and integration. Or we can retreat into a world sharply divided, and ultimately in conflict, along age-old lines of nation and tribe and race and religion.”
Three hundred and sixty-four days later, Trump delivered America’s answer: Option number two. His speech on Tuesday turned Obama’s on its head. Obama focused on overcoming the various challenges—poverty, economic dislocation, bigotry, extremism—that impede global “integration,” a term he used nine times. Trump didn’t use the term once. Obama used the word “international” 14 times, always positively (“international norms,” “international cooperation,” “international rules,” “international community”). Trump used it three times, in each case negatively (“unaccountable international tribunals,” “international criminal networks,” “the assassination of the dictator's brother using banned nerve agents in an international airport”) Obama warned of a world “sharply divided… along age-old lines of nation and tribe and race and religion.” Trump replied by praising “sovereignty” or invoking “sovereign” no fewer than 19 times. And while he didn’t explicitly defend divisions of “tribe and race and religion,” he talked about the importance of nations “preserving the cultures,” which is a more polite way of saying the same thing.
What was it like inside the brain of an ancient prophet?
James Kugel has been spent his entire scholarly career studying the Bible, but some very basic questions about it still obsess him. What was it about the minds of ancient Israelites that allowed them to hear and see God directly—or at least, to believe that they did? Were the biblical prophets literally hearing voices and seeing visions, understanding themselves to be transmitting God’s own exact words? If so, why did such direct encounters with God become rarer over time?
In his new and final book, The Great Shift, Kugel investigates these questions through the lens of neuroscientific findings. (The approach is reminiscent of other recent books, like Kabbalah: A Neurocognitive Approach to Mystical Experiences, co-written by a neurologist and a mysticism scholar.) First, Kugel uses biblical research to show that ancient people had a “sense of self” that was fundamentally different from the one modern Westerners have—and that this enabled them to experience and interpret prophecy differently than we do. Then he uses scientific research to show that we shouldn’t assume their view was wrong. If anything, our modern Western notion of the bounded, individual self is the anomaly; most human beings throughout history conceived of the self as a porous entity open to intrusions. In fact, much of the rest of the world today still does.
The Republican Party laid the groundwork for dysfunction long before Donald Trump was elected president.
President Trump’s approach to governance is unlike that of his recent predecessors, but it is also not without antecedents. The groundwork for some of this dysfunction was laid in the decades before Trump’s emergence as a political figure. Nowhere is that more true than in the disappearance of the norms of American politics.
Norms are defined as “a standard or pattern, especially of social behavior, that is typical or expected of a group.” They are how a person is supposed to behave in a given social setting. We don’t fully appreciate the power of norms until they are violated on a regular basis. And the breaching of norms often produces a cascading effect: As one person breaks with tradition and expectation, behavior previously considered inappropriate is normalized and taken up by others. Donald Trump is the Normless President, and his ascendancy threatens to inspire a new wave of norm-breaking.