"Over all the years that followed, I found myself thinking from time to time of that picture, my hand over the baby's mouth. I knew then, and I still think now, that the right thing to do would have been to kill that baby."
Like a morbid time capsule from the mind of an elder New York psychiatrist, a report surfaced this week in which Dr. Fredric Neuman essentially confesses to criminal breaches of medical ethics. His essay "The Cyclops Child," which appeared on the website of the journal Psychology Today, recounts the dishonesty and cruelty surrounding the brief existence of a child with severe birth defects. Compounding the offenses detailed in the story itself, Dr. Neuman uses dehumanizing terminology -- referring to the infant as a "monster" -- and focuses disproportionately on the hardship endured by hospital staff, as opposed to the dying child (or "it," according to the author). An anachronism of some unadulterated views from a voice of the medicinal community circa 1960, "The Cyclops Child" is an offending document in itself.
I will summarize here the critical facts resurrected by Dr. Neuman, but please do read his entire essay as well. While he withheld the specifics, I estimate that the hospital was St. Vincent's (now closed), and the year was 1959 or 1960 (based on my review of his curriculum vitae). The essay -- which catalogues what would today be considered kidnapping, assault and possibly murder -- shocks our modern sensibilities. "As a person with disabilities, I find this entire post chilling," one of Dr. Neuman's readers wrote. "I hope the NY state medical board investigates the physicians involved and takes appropriate action," chimed in another.
Here's what happened. A mother gave birth to an infant with a fatal developmental defect called holoprosencephaly. Infants born today with this condition are almost unheard of, as most women will opt to abort the pregnancy when the condition is identified on an early ultrasound. Fifty years ago, women didn't have this option. They were treated by obstetricians who felt that they operated on a higher plane than the rest of us, paternalistically keeping information from patients and limiting options however they saw fit. In this case, the obstetrician decided the parents should not know that the baby was born with the condition. Instead, he and the rest of the team lied to the parents, telling them their baby was dead.
A word about this baby's condition, holoprosencephaly. As humans develop in the womb from a bundle of cells into distinct tissues and organs, the nervous system emerges from a structure called the "neural tube." In rare instances that doesn't form appropriately. In the case of holoprosencephaly, a defect in the neural tube occurs at the head, and various midline structures like the brain, eyes, and mouth may not fully form. In this case, Dr. Neuman describes the deformity using "cyclops" -- which is actually a valid medical term, but is used here outside of the appropriate pathological context -- in describing eye tissue that did not separate into two distinct eyes. It is disturbing that the term holoprosencephaly never occurs in his essay.
The baby is treated as an object and given no gender, referred to as "it." In the events that followed there is no indication that he received any palliative treatment, as would be the standard today (comfort care, including pain management).
The hospital staff expected and hoped that the newborn would soon pass away, but he did not. They left the child ignored in the back of the hospital nursery. Doctors and nurses waited for him to starve. An excruciating death watch followed that dragged on for about 13 days, as Dr. Neuman notes in the comments section of his piece. The child's cries anguished nursery staff who kept the dark secret. Dr. Neuman wrote:
"There was a price to be paid. Dying though it might be, the staff still had to tend to it, to change it, to clean it, to hold it in repeated attempts to comfort it. The baby was suffering, and so was everyone else. Earlier, I had caught an aide crying. A couple of nurses had stayed home that day. It was at that point that I began to think about killing the baby."
Dr. Neuman did not kill the baby. But he did torture him at the direction of his senior resident, who asked him to practice a finger amputation procedure on the child:
"The way you treat a baby's extra fingers is to tie a ligature, a string, as tight as you can around the base of the finger. The blood supply is cut off, and after a while the finger falls off.
When I went over to the baby, it was lying quietly in its bed. It did not object when I picked up its hand. But when I tied the ligature around its finger and pulled tightly, it screamed."
The newborn finally died. The parents of the child never knew of the suffering or the needless procedure. Dr. Neuman still believes he should have euthanized the child:
Over all the years that followed, I found myself thinking from time to time of that picture, my hand over the baby's mouth. I knew then, and I still think now, that the right thing to do would have been to kill that baby. It wasn't really a baby; it just sounded like a baby--that's what I tell myself. But I would like to stop thinking about it. After all, the whole thing happened over fifty years ago.
I'd compare Dr. Neuman's sickening tale to the work of Edgar Allen Poe, except that Dr. Neuman has not written a piece of creative fiction. This is the truth, we're told. So, has Psychology Today just published potential evidence in a trial for murder?
That's possible, but in no way probable, says Professor Martin Guggenheim of the New York University School of Law. Despite the fact that the statute of limitations doesn't run out on homicide, Guggenheim can't imagine a city prosecutor being interested in the case today. "Particularly because St. Vincent's is no more, I'd be more than a bit surprised if a prosecutor would do anything about this," Guggenheim says. All the other crimes - the kidnapping, the assault, the lies - are far too dated to be actionable.
Disability scholar Rebecca Garden, who teaches medical bioethics at Upstate Medical University, points out that despite the prevailing 1960's attitudes in this essay, deciding when life is worth living is still a contested issue. Disability rights advocates are still dealing with this on a daily basis. In this context, she feels Dr. Neuman's blog post is "distressing on many levels."
"This piece seems to be a complex and conflicted mix of confession, provocation, and defense or apologia," Professor Garden told me. Parts of "The Cylops Child" are written in the present tense. There is a passage where Dr. Neuman suggests that an obstetrician could smother such a baby. His observation that "such things happen" isn't confined to the past, Garden observes.
How can we fathom Dr. Neuman repeatedly describing this child as a monster? According to Laurence McCullough of the Center for Medical Ethics and Health Policy at Baylor College of Medicine, we're merely witnessing equally valid discourse from another era. Our modern scientific understanding that such developmental anomalies are errors of reproductive development derived from our evolutionary biology carries little human meaning, Prof. McCullough points out. A monster was considered "a portent sent by the Gods to punish transgression."
At least that's something people can somehow grasp and justify. "What may, at first, strike us as a wrong-headed or even repellent discourse of the past... turns out to have a distinct advantage over our own," McCullough says.
Though I would like to think of "The Cyclops Child" as a dusty artifact, it nonetheless appeared on my computer in 2012, from the mind of person living contemporaneously. I find myself trying to construct a narrative around it, to explain and contain it. Maybe Professor McCullough is right that "human scale" explanations at least offer us a framework to comprehend the things that distress us.
Alright, then. I'll believe the essay is a monstrosity published by the Gods to punish one doctor's fifty-year-old transgression.
The Facebook founder has discussed "community" more than 150 times in public. A close reading reveals his road map for the platform’s future.
There’s a story that Mark Zuckerberg has told dozens of times over the years. Shortly after he’d launched Facebook in February 2004, he went to get pizza with Kang-Xing Jin, a coder friend who would become a Facebook executive, at a place around the corner from his dorm.
In one telling, Zuckerberg says he was thinking, “this is great that we have this community that now people can connect within our little school, but clearly one day, someone is going to build this for the world.”
But there was no reason to expect that this kid and his group of friends would be the people who would build this for the world. “It hadn’t even crossed my mind,” he said in 2013. They were technically gifted, but as Zuckerberg tells it, they had basically no resources or experience at a time when there were already massive technology companies trying to create social networks from MySpace to Microsoft, Google to Yahoo.
Trump’s supporters backed a time-honored American political tradition, disavowing racism while promising to enact a broad agenda of discrimination.
THIRTY YEARS AGO, nearly half of Louisiana voted for a Klansman, and the media struggled to explain why.
It was 1990 and David Duke, the former grand wizard of the Ku Klux Klan, astonished political observers when he came within striking distance of defeating incumbent Democratic U.S. Senator J. Bennett Johnston, earning 43 percent of the vote. If Johnston’s Republican rival hadn’t dropped out of the race and endorsed him at the last minute, the outcome might have been different.
Was it economic anxiety? The Washington Post reported that the state had “a large working class that has suffered through a long recession.” Was it a blow against the state’s hated political establishment? An editorial from United Press International explained, “Louisianans showed the nation by voting for Duke that they were mad as hell and not going to take it any more.” Was it anti-Washington rage? A Loyola University pollster argued, “There were the voters who liked Duke, those who hated J. Bennett Johnston, and those who just wanted to send a message to Washington.”
Released 50 years ago, “I Am the Walrus” is endlessly analyzable, and yet somehow analysis-proof.
“It seems very pretty,” she said when she had finished it, “but it’s rather hard to understand!” (You see she didn’t like to confess, even to herself, that she couldn’t make it out at all.) “Somehow it seems to fill my head with ideas—only I don’t exactly know what they are!”
—Alice, upon first reading “Jabberwocky” in Through the Looking-Glass
Inspired nonsense has held me in its spell for as long as I can remember. Growing up in a house full of books, I spent the most time with the ones that were seriously silly. I graduated from Dr. Seuss to The Complete Nonsense of Edward Lear, a well-thumbed Dover paperback adorned with Lear’s own absurd pen-and-ink drawings, so you could see just what he meant by the dolomphious duck and her runcible spoon. And I dove deep into The Annotated Alice, Martin Gardner’s illuminating exposition of Lewis Carroll’s Alice books, its margins bursting with side notes that made the curious main text even curiouser.
Full of wit, music, and color, this Día de Muertos–themed tribute to family marks a return to form for the studio.
Well, that’s more like it. As someone who has written at some length about the decline of Pixar Studios since its acquisition by Disney, I am especially pleased to be proven wrong, even if only intermittently. The studio’s latest release, Coco, is one such occasion.
Though Pixar has never acknowledged as much publicly, its cinematic philosophy (and business model) has shifted notably: Where the studio once aspired to excellence with every single picture—Pixar President Ed Catmull wrote an entire book expressing this ideal, Creativity Inc.—it now seems content to roll out a few profitable, hyper-merchandise-friendly sequels for every genuinely original feature it unveils. (To put it another way, the studio has shifted away from “creativity” and toward “inc.”)
The outspoken lawyer-turned-ESPN analyst may be the moral conscience college basketball needs this season, as it grapples with its biggest scandal in decades.
After 22 years as a college-basketball commentator for ESPN, Jay Bilas is now slogging through his busiest November yet. Finding himself far-flung during a monthstacked with tournaments and traveling from Chicago to Maui—with maybe a night to recharge in his Charlotte-area home—is common practice by now. But the addition of the Phil Knight 80, a Thanksgiving tournament in Oregon that commemorates the Nike founder’s 80th birthday, has thrown Bilas’s carefully controlled schedule for a loop. “For me to do 12 games in basically seven days,” Bilas told me by phone last week, “is unprecedented.”
Such is the life of perhaps the most well-regarded and trusted individual in all of college basketball. With his voice honed over the decades into a reassuring timbre, Bilas effectively serves as the sport’s Walter Cronkite—a respected commentator unafraid to speak openly about an American institution beset by a fraught and ongoing debate about amateurism (and whether student-athletes should be paid), as well as a bribery scandal that has mushroomed into its most serious crisis in years. “The NCAA makes its own rules, and their rules are bad,” Bilas said during a panel discussion in Baltimore last month. “That’s been pointed out forever, and so for the people in charge, and specifically the president of the NCAA, to talk about some code of silence in college basketball that people weren’t telling them what was going on—they knew exactly what was going on.”
As America has turned away from searching for extraterrestrial intelligence, China has built the world’s largest radio dish for precisely that purpose.
Last January, theChinese Academy of Sciences invited Liu Cixin, China’s preeminent science-fiction writer, to visit its new state-of-the-art radio dish in the country’s southwest. Almost twice as wide as the dish at America’s Arecibo Observatory, in the Puerto Rican jungle, the new Chinese dish is the largest in the world, if not the universe. Though it is sensitive enough to detect spy satellites even when they’re not broadcasting, its main uses will be scientific, including an unusual one: The dish is Earth’s first flagship observatory custom-built to listen for a message from an extraterrestrial intelligence. If such a sign comes down from the heavens during the next decade, China may well hear it first.
Can changing the structure of a language improve women’s status in society?
“My homeland is the French language,” author Albert Camus once wrote—and many French people would agree. That’s why any attempt at changing the language is often met with suspicion. So the uproar was almost instantaneous when, this fall, the first-ever school textbook promoting a gender-neutral version of French was released.
It was a victory for a subset ofFrench feminists who had argued that the gendered nature of the language promotes sexist outcomes, and that shifting to a gender-neutral version would improve women’s status in society. Educating the next generation in a gender-inclusive way, they claimed, would yield concrete positive changes, like professional environments that are more welcoming to women.
A mosque attack that killed at least 235 people in Egypt stands out for its ruthlessness, but not for the sinister targeting of the faithful.
The attack on a mosque in Egypt’s Sinai Peninsula during Friday prayers appears to be the deadliest in the country’s recent history. State media now puts the death toll at 235. It has surpassed that of the suspected airliner bombing of 2015, when a Russian jet exploded over the Sinai Peninsula in an explosion later claimed by the Islamic State. In that incident, all 224 people onboard died.
State media described a multi-staged assault in which attackers detonated a bomb during Friday prayers, shot people trying to flee, and then shot at ambulances appearing at the scene. The New York Times summarized the significance: “Even by recent standards in Egypt, where militants have blown up Christian worshipers in church pews and gunned down pilgrims in buses, it was an unusually ruthless and deadly assault.”
How did Andrew Anglin go from being an antiracist vegan to the alt-right’s most vicious troll and propagandist—and how might he be stopped?
On December 16, 2016, Tanya Gersh answered her phone and heard gunshots. Startled, she hung up. Gersh, a real-estate agent who lives in Whitefish, Montana, assumed it was a prank call. But the phone rang again. More gunshots. Again, she hung up. Another call. This time, she heard a man’s voice: “This is how we can keep the Holocaust alive,” he said. “We can bury you without touching you.”
When Gersh put down the phone, her hands were shaking. She was one of only about 100 Jews in Whitefish and the surrounding Flathead Valley, and she knew there were white nationalists and “sovereign citizens” in the area. But Gersh had lived in Whitefish for more than 20 years, since just after college, and had always considered the scenic ski town an idyllic place. She didn’t even have a key to her house—she’d never felt the need to lock her door. Now that sense of security was about to be shattered.
The post-Weinstein moment isn’t a war on sex. It’s a long-overdue revolution.
One of the principal pleasures of Mad Men, on rich display beginning with the pilot episode, was looking at all of the crazy things people used to be able to do in offices: smoke, drink, and—if they were male—grope and corner and sexually humiliate the women, who could either put up with it or quit.
It’s just about impossible to imagine someone lighting a cigarette in today’s hyper-sanitized workplace; anyone with liquor on his or her breath at midday is usually targeted as a massive loser or frog-marched to human resources. But to look at the shocking and ever-growing list of prominent men recently and credibly accused of acts ranging from sexual harassment to violent rape is to realize that abhorrent treatment of women is alive and well in many American workplaces.