Without technology, the human body is a pretty limited instrument. We cannot write without a pen or pencil, nor eat hot soup without a bowl and, perhaps, a spoon.
And yet, only certain technologies are labeled "assistive technologies": hearing aids, prostheses, wheelchairs. But surely our pens and pencils, bowls and spoons assist us as well. The human body is not very able all on its own.
My curiosity about how we think about these camps of "normal" and "assistive" technologies brought me to Sara Hendren, a leading thinker and writer on adaptive technologies and prosthetics. Her wonderful site, Abler, was recently syndicated by Gizmodo. I talked to her about why crutches don't look cool, where the idea of "normal" comes from, and whether the 21st century might bring greater understanding of human diversity.
You have written and spoken extensively about the idea that “all technology is assistive technology.” What do you mean?
Scholars working in disability studies have called attention to this as a redundancy in technical terminology before me, and I’m trying to bring it to tech journalism: What technology would not be called assistive? And yet that term stands for a set of devices that are seen as set apart.
“Assistive technologies” have largely taken their points of departure from medical aids, primarily because in industrialized cultures, people with atypical bodies and minds have been thought of as medical “cases,” not as people with an expanded set of both capacities and needs. So a lot of the design attention to things like crutches, wheelchairs, hearing aids, and the like have followed the material look and structure of hospital gear. And accordingly, designers and people working in tech have “read” them as a branch of medical technologies and, usually, uninteresting.
Scholars and people who are activists for disability rights have spent a lot of energy in the last decades showing that disability is not about the state of a human body; it’s about the built environment, structures, and institutions that make life possible and meaningful—or conversely, impossible and meager—for certain kinds of bodies and minds. In other words, disability studies has worked to transition an understanding of disability from a “medical model” to a “social model.” A social model of disability opens up the discussion to consider how design and technologies might be re-imagined for all kinds of bodies, not “assigned” to those with medicalized conditions.
By returning “assistive technology” to its rightful place as just “technology”—no more, no less—we start to understand that all bodies are getting assistance, all the time. And then design for everyone becomes much more interesting.
I think what stands out to me about rethinking technology in this way is not so much what it says about disability and how we think about people with unusual needs, but how it pushes us to rethink “normal” abilities.
Right. It’s a myth that there’s a normative set of capacities anyway! What I want people to see is that starting with design and disability actually opens up interesting design questions with many, many bodies and uses in mind.
Tell me more about that myth.
The “normal curve” is a very recent historical way of measuring human capacity—it dates to the early 19th century, with the invention of social sciences, meaning methods for measuring humans as populations, people’s qualities relative to one another. So “normal” capacities are statistical averages, but of course those change over every single person’s lifetime. So even if at some age you occupy a normative, able-bodied way of hearing, seeing, etc., your body over the lifespan will move in and out of relatively independent and much more interdependent stages. Aging being the profound universal, of course—but also temporary injury, an unexpected change in capacities, and so on.
Beyond that, though, it’s useful to consider all the many, subtle, unvoiced “needs” that all of us are meeting via our technologies and extensions. Social needs, political needs, all kinds of things. Using your phone to avoid an awkward lull in a conversation. Using your headphones to create a kind of sphere of anonymity on the subway. Technology is nothing if not assistive! Its designed assistance is integral to its very coming into being.