Allergic to Touch

In dermatographia, a person's skin becomes flushed and swollen when touched. One woman is leading a community based on the beauty of it, turning inflammation into creative solidarity.
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Ariana Page Russell/Skin Tome

“They knew that their skin did something weird, but they didn’t know what it was.”

People who reach out to Ariana Page Russell, an artist in Brooklyn, often see their own skin in hers. Many have epidermal reactions like Russell’s, furrowing into palpable welts at the provocation of even a light scratch of the neck or rub of the eye.

“It’s fascinating the way people respond,” Russell told me. “People email me from all over. China, Colombia, Brazil, Turkey—I have a ton of people emailing me from Turkey.” For many who find her photography online, Russell says, a once alienating condition becomes a point of solidarity.

“They see the photos and say, ‘Hey, my skin does that, too.’ I didn’t know it was a thing with a name,” Russell said. “They feel better having a name for it, and knowing they’re not alone.”

That name is dermatographia urticaria, usually just called dermatographia or dermographism (literally "writing on the skin"). It’s a type of "trauma-induced urticaria," but the trauma in this case can be almost nothing—basically an allergic reaction to minimal physical stimulation. Scratching, stroking, rubbing, or slapping the skin makes cells release inflammatory chemicals like histamine, and that results in fluid leakage from superficial blood vessels.

Of course, slap or scratch anyone and it will inflame their skin. In dermatographia the reaction is distinctly more severe. There is puffiness and extensive redness (in fair skin). Everyday things like wearing a belt or scratching an itch can make a person appear to have endured significant injury. If Russell scratches her face, it swells. “It looks like I have a black eye or something,” she said. “I have to be careful and not rub my eyes. I definitely have had people ask, ‘Whaaat happened to you!?’”

Ariana Page Russell/Skin Tome

The reaction can also be brought on by cold weather, strong emotions, hot water, or exercise. The finding is usually incidental and requires no treatment, but some people with severe or especially itchy versions take antihistamines to minimize the allergic-type symptoms, which can then spread to parts of the skin that were not stimulated. Russell doesn’t take medication. Her treatment has consisted of owning her skin and turning the condition into something positive.

“Thank you for making what we have an art form and giving me a way to explain to people it’s perfectly normal and beautiful,” a reader from Belgium wrote to Russell recently. “I have lived with it for years trying to hide it and now I can say it’s my art.”

Russell realized that she had dermatographia in an understated fashion. “I just thought my skin was really sensitive, and then I started photographing the drawings and people were like, ‘What is this?’” Russell was in graduate school at the time and went to a University of Washington physician who gave her the diagnosis. “It was like, here you go, congratulations. Everything else I kind of learned on my own.”

Skin Tome

Russell started taking the photos in 2003. She later began a website with some of her skin-writing photos and in 2008, without telling Russell, a friend submitted one of the images to a site called “It’s Nice That.” They published it, and her site “started going crazy.”

“And then I got this email with the subject line, ‘Hello from Kelsey at ABC News,’ and I thought, is this spam?” It wasn’t. It led to a 20/20 segment. Since then, she has become a modern face of the condition. Also the body and voice.

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James Hamblin, MD, is a senior editor at The AtlanticHe is the host of If Our Bodies Could Talk.

 
 
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