Midwives for the Dying

A physician and nurse practitioner discuss the emerging role of medicals professionals who ease the death process. There is no one right way to die, but just as we need help coming into the world, we need support and love going out of it. 
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With the holidays approaching, it is a fitting time to think about dying. It has long been known that more people die in winter than any other season, but a 2010 review of nearly 60 million U.S. deaths showed that Christmas is the single most common day of death, with New Year Day close behind. Dying, like life, can go poorly or well, and those who know it well are in a position to make an important difference. In the last few decades a new type of health professional has emerged whose contributions to dying resemble—of all people—those of a midwife.

For millennia, midwives have cared for and assisted childbearing women throughout pregnancy, labor, birth, and the postpartum period. Particularly for women who have never given birth before, the support and experience of a midwife can reduce anxiety and confusion, decrease pain, and at least at times, even make the experience more peaceful. 

The parallels between birth and death are numerous and remarkable. Like birth, dying is often associated with pain, uncertainty, and fear. In both cases, there is lots of waiting, certain signs occur reliably, and the final timing is not predictable. In neither case are health professionals in control. In death as in birth, patience, kindness, and privacy can make the experience more healing, bringing out more of the good and less of the bad in people. And a health professional with appropriate training and experience can do a lot to help patients and families negotiate both transitions.

One person who regularly plays this role is Peg Nelson, nurse practitioner and director of pain and palliative services as St Joseph’s Mercy Oakland Hospital in Pontiac Michigan. Peg has been a nurse for thirty-three years and brings fifteen years of experience in palliative care to her patients. She is the recipient of numerous awards for her work, which she now regards as her life’s calling.

During a recent conversation with Peg, I had the opportunity to ask her about the difference a person who partners with a patient and family at end of life can make. Peg does not immediately call herself a midwife, nor does she use the related term doula. But she does offer a number of helpful insights from which everyone contemplating death or caring for a dying person can benefit.

It must be very depressing to deal with death all the time.

Of course it can be difficult, but most of us in this work don’t get depressed. One of my colleagues lost her husband, and for a while it was very difficult for her to function at all. But over time she learned to draw on her experience to help others, and now she tends to form a special connection with women who are going through a similar experience. 

Sure, you often feel sad, but you also feel privileged to participate in the love and support family members give each other. Although we deal with dying every day, we are not members of some doom and gloom club. In fact, there is a lot of joy in being able to make a difference and helping to fill the situation with caring and love.

But you don’t control death. Don’t you constantly feel helpless?

Not really. Once you admit to yourself that dying, like birth, is not something you can control, it frees you up to use your compassion to help people. For example, we can usually make dying patients comfortable and help them find ways to make the most of their remaining days. We are less like surgeons performing an operation ourselves than coaches helping someone else. And there is a lot we can control. We can always listen—really listen—to patients and families. We can always be with them—really with them—in the moment. And we can always care—really care for them—throughout the experience.

What does a good death look like?

It is important to recognize that there is no one right way to die. In some cases, the dying person is elderly, and their death is seen by both patient and family as perfectly natural, something everyone has been anticipating and preparing for, often for years. In other cases, such as motor vehicle accidents, death comes suddenly and unexpectedly, and no one is prepared at all. And of course every family is different. Some are distant and reserved, while others are very touchy feely. No matter what the circumstances, our mission is to care and help people find their best path.

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Richard Gunderman, MD, PhD, is a contributing writer for The Atlantic. He is a professor of radiology, pediatrics, medical education, philosophy, liberal arts, and philanthropy, and vice-chair of the Radiology Department, at Indiana University. Gunderman's most recent book is X-Ray Vision.

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